Events

Register for the “Sickle Cell Disease and Gene Therapies” Webinar Series

AgendaMeet the Presenters

In observance of National Sickle Cell Awareness Month, OHRP is partnering with the HHS Office of Minority Health (OMH) to host a two-part webinar series in September on sickle cell disease (SCD) and gene therapies.

OHRP is leading the first webinar on September 18, “Trust, Clinical Trials, and Transformative Therapies: Ethical Pathways in Gene Therapy and Sickle Cell Disease”. This event will bring together individuals living with SCD (i.e., warriors), clinical researchers, bioethics experts, and a community-based organization to explore how diverse partners can collectively build confidence and trust around life-changing, novel therapies in historically underserved populations.

The second webinar, “Innovations and Advances in Sickle Cell Disease Gene Therapies” is led by OMH and will be held on September 25. This webinar will focus on the Centers for Medicare & Medicaid Services (CMS) Cell and Gene Therapy Access Model, which leverages outcomes-based agreements to reduce costs and increase access for eligible warriors enrolled in participating state Medicaid programs.

Learn more about emerging gene therapies and register for both webinars below!

Click here to register for Part 1 (September 18, 2025, from 1:00 – 2:30 PM ET)

Click here to register for Part 2 (September 25, 2025, from 2:00 – 3:30 PM ET)