Additional Resources About Human Subjects Research

This page provides information on additional resources that can help participants learn about volunteering for clinical research studies.  It includes a glossary of terms about clinical research in both English and Spanish. The page also provides links to other Federal offices and agencies that provide information about research and research participation, including clinicaltrials.gov, the U.S. Food and Drug Administration, the HHS Office of Research Integrity, and the National Institutes of Health.  In addition, there are external links to a selection of materials from public media sources about research and research participation.
 

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OHRP has compiled external resources about research and research participation. These resources provide additional information and reflect a range of perspectives and experiences.

Note that the inclusion of external hyperlinks does not constitute endorsement or recommendation by the U.S. Government, HHS, or OHRP of the linked web resources or the information, products, or services contained therein. This graphic notice, Disclaimer for external links, means that you are leaving the hhs.gov/ohrp site. OHRP does not exercise any control over the content on external sites. You will be subject to that site's privacy policy when you leave hhs.gov/ohrp.

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Glossary of Terms Glossary of Human Terms

This link takes you to a glossary of common terms used in clinical research:

 

Relevant Federal Resources Federal Resources Related to Human Subjects Research

Below are links to several resources related to human subjects research from agencies in the Federal government:

ClinicalTrials.gov
Registry and database of current clinical studies.
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U.S. Food and Drug Administration (FDA)
Information for patients in clinical trials.
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U.S. Food and Drug Administration (FDA)
Information on minority health with information about participating in clinical trials.
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Basic Research Concepts
On the Office of Research Integrity (ORI) website.
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National Institutes of Health (NIH)
Information about participating in clinical trials.
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Media and Other Resources Media and Other Human Subjects Research Resources

Below is a selection of materials from public media sources about research and research participation.

Health News Review publishes critical analyses and reviews using a defined set of criteria intended to promote the interests of the general public.
Visit https://www.healthnewsreview.org/
VIEW THIS WEBSITE >>
Could gene therapy cure sickle cell anemia?
60 Minutes on CBS, December 29, 2019
VIEW THIS VIDEO >>
Can Hypothermia Save Gunshot Victims?
By Nicola Twilley
The New Yorker, November 28, 2016
VIEW THIS ARTICLE >>
Do Clinical Trials Work?
By Clifton Leaf
New York Times, July 13, 2013
VIEW THIS ARTICLE >>
Twitterology: A New Science?
By Ben Zimmer
New York Times, October 29, 2011
VIEW THIS ARTICLE >>

Please let us know if these materials are useful by completing the survey below. In addition, we welcome your feedback via email at ohrp-edu@hhs.gov.

Return to www.hhs.gov/About-Research-Participation

Content created by Office for Human Research Protections (OHRP)
Content last reviewed on January 28, 2020