Mapping Hepatitis Elimination in Action
A growing number of hepatitis elimination projects are being established across the United States. These projects implement the National Viral Hepatitis Action Plan’s call for more coordinated and collaborative efforts aimed at elimination. A wide range of stakeholders including states, local jurisdictions, health systems, and non-governmental organizations are leading and collaborating in these efforts across a variety of settings. To help keep track of these promising efforts, we have developed this map.
Our goal is to benefit all stakeholders in the fight against viral hepatitis and:
- help stakeholders find others who believe it is feasible to eliminate the public health threat of viral hepatitis;
- provide the opportunity to learn from and contact others who are pursuing similar goals;
- expand support for elimination efforts by identifying existing efforts that stakeholders can join; and
- raise awareness of the growing number of states, local jurisdictions and non-governmental organizations that are setting their sights on achieving the elimination of viral hepatitis among the people they serve.
This resource will be updated regularly. If you are part of an established elimination effort and would like to be added to this map, please email Corinna.Dan@hhs.gov with a description of your project and a link to online information.
MedStar Health, HCV Testing and Linkage to Care Elimination Program
In 2015, the MedStar-wide hepatitis C testing and linkage to care program was developed at the regional healthcare system in greater Washington DC. The program was created to identify and assist patients in primary care that had not been tested, linked, or had been lost, link to hepatitis C care.
Grady Liver Clinic
Founded in 2002, the Grady Liver Clinic is based at Grady Health System, a safety net health system in Atlanta, GA. The Grady Liver Clinic is a unique model for hepatitis C care in that it is run and staffed by general internists with expertise in hepatitis C treatment. It uses a multidisciplinary team approach including physicians, clinical pharmacists, nurses and patient navigators, the Grady Liver Clinic improves access to hepatitis C care for patients with health care disparities. The clinic has been nationally recognized for implementing large scale hepatitis C screening and linkage to care as well as treatment programs. The clinic is leading an HCV elimination effort at Grady Health System using a combined approach including widespread screening, linkage to care, antiviral treatment and population management.
New York, NY
Charles B. Wang Community Health Center: The Hep B Moms Program & “The Test” Hep B Community Education Initiative
In 2010, the Charles B. Wang Community Health Center created the Hep B Moms Program to prevent transmission of hepatitis B (HBV) from mother-to-child by providing comprehensive multidisciplinary care to mothers with chronic HBV and their infants. All pregnant women with chronic HBV are evaluated, educated and linked to HBV care with a primary care provider or specialist to ensure appropriate HBV care while infants are followed until completion of HBV vaccinations and post-vaccination serologic testing.
To raise community awareness about getting tested for HBV, the Health Center partnered with renowned NYC-based comic book writer, Amy Chu, and Chinatown-raised illustrator, Louie Chin, to create, “The Test”, a comic book about a nurse practitioner who encourages members of her community to get tested for HBV. This engaging book helps readers understand the importance of HBV screening and encourages them to take action to get family and community members tested.
Liver Disease and Hepatitis Program, Alaska Native Tribal Health Consortium (ANTHC)
ANTHC has met the WHO elimination goals among Alaska Natives (AN) for hepatitis A and B. For hepatitis C, plans include expansion of screening and treatment in the homeless clinic, behavioral health, opioid substitution, and detox programs; work with prisons to treat Alaska Natives who are incarcerated; expand screening to include pregnant women and emergency departments; and work with community health practitioners to screen baby boomers and people who inject drugs living in isolated communities in Alaska so they can be treated in their community.
Southwest Recovery Alliance
The Southwest Recovery Alliance is a regional grassroots organization dedicated to the implementation of harm reduction interventions, public health strategies, drug policy transformation, and justice reform in Arizona and throughout the Southwest.
The Southwest Recovery Alliance focuses on building alliances that amplify the voices of people living with Hepatitis C, impacting statewide awareness on HCV prevention and elimination, navigating people to HCV treatment, decreasing barriers to HCV treatment, and maintaining and expanding our harm reduction education campaigns and direct services throughout the region.
END B is a collaborative comprised of the UC Davis Comprehensive Cancer Center (UCDCCC), the Health and Life Organization (HALO), the Sacramento (California) County Public Health, and the California Primary Care Association (CPCA). HALO is the largest healthcare provider in Sacramento County serving at-risk Asian Americans and South East Asians, particularly those born in CDC-identified hepatitis B virus (HBV) endemic areas. END B seeks to end the perinatal transmission of HBV, achieve increased vaccination of HALO’s patients (of all races/ethnicities), and link HALO patients with HBV to treatment, saving lives and sparing the next generation from HBV infection. We developed END B to serve as a national, replicable model Hepatitis B demonstration program based on the synergistic collaboration of the academic, community, and governmental sectors.
American Liver Foundation, Pacific Coast Division
In November 2018, the San Diego County Board of Supervisors voted to authorize the County Health and Human Services Agency to embark on a public/private partnership to develop a roadmap to eliminate hepatitis C by 2030. The American Liver Foundation Pacific Coast Division is serving as the facilitating organization.
Scott Suckow email: firstname.lastname@example.org
SF Hep B Free
Founded in 2007, SF Hep B Free - Bay Area is an organization dedicated to raising awareness of hepatitis B and liver cancer in the San Francisco Bay Area. It does so by creating public and healthcare provider awareness about the importance of testing and vaccinating those at risk for hepatitis B, promoting routine hepatitis B testing and vaccination for those at risk, and advocating and providing accessible, affordable, and culturally and linguistically appropriate linkages to care and treatment for individuals chronically infected with hepatitis B. SF Hep B Free -Bay Area’s goal is to make the San Francisco Bay Area free of the harmful health effects and tragic disease caused by hepatitis B. By bringing together local stakeholders including government, healthcare, business, media and advocacy groups, SF Hep B Free – Bay Area has created a model for effective grassroots education, increased community screening and compelling health advocacy.
End Hep C San Francisco
Established in 2016, End Hep C SF is a multi-sector independent consortium operating under the principles of collective impact. End Hep C SF consists of approximately 150 members representing 34 local partner public and private agencies, all working together to realize the vision of eliminating hepatitis C as a public health threat in San Francisco. End Hep C SF emphasizes collective decision-making, community leadership, data sharing, and ongoing evaluation and as key components of the initiative’s process.
The FL HCV elimination group convened national and local experts in August 2019 in Orlando, FL for its inaugural meeting to address screening, treatment-level barriers and liver cancer prevention. The meeting goal was to support a statewide HCV elimination program and it was attended by stakeholders including representatives from the FL DOH, patients, medical and social service providers, researchers, policymakers and others from private organizations. This followed an earlier HCV elimination meeting in February 2019, held in Miami, FL by the major liver disease societies (AASLD/EASL). Planned activities will strengthen and be synergistic with the current efforts from the FL DOH viral hepatitis program and include involvement of four major academic centers in FL. Stakeholders will continue to meet in 2020 with the goal of producing a guidance document with support from both the American Liver Foundation and ASTHO by participating in monthly peer-to-peer learning opportunities for hepatitis elimination.
HEPP and Better-HEALTH
The Asian Health Coalition is a nonprofit organization located in Chicago, IL. Our aim is to eliminate health disparities among Asian, Pacific Islander, African, and other communities of color by utilizing a collaborative partnership approach to support the development and implementation of culturally and linguistically appropriate health programs and initiatives. One of our main health programs is the Hepatitis Education and Prevention Program (HEPP), and its expansion Better-HEALTH (Helping Educate All and Link Those with Hepatitis). Raising awareness for hepatitis B and liver cancer with both the community and healthcare providers, these programs work together to prevent new cases of hepatitis B, increase the identification of individuals with hepatitis B, and navigate them to high-quality, ongoing medical care. This is done through outreach, education, identification, patient navigation, screening, vaccination, management, and treatment of those already affected, and those at risk of being affected by hepatitis B in our communities.
Hep Free Hawaii
On World Hepatitis Day, July 28 2019, Hep Free Hawaii partnered with the Hawaii Department of Health and the Hawaii Health and Harm Reduction Center to host the inaugural meeting to develop Hawaii's Hepatitis Elimination Plan. It was attended by 45 stakeholders including patients, consumers, medical and social service providers, policymakers, among. With the support of Lieutenant Governor Josh Green, Hepatitis Elimination was proclaimed an important priority for Hawaii. See the local news spot about the event here. Stakeholders continue to meet monthly with the goal of producing a guidance document by July 28, 2020.
Hepatitis C Elimination Program
The Louisiana Department of Health is pursuing hepatitis C elimination through the combination of a first-in-nation Subscription Model for hepatitis C treatment and a public health-based community-to-clinic care support model. Through these strategies, LDH plans to treat over 10,000 Medicaid and incarcerated individuals by the end of 2020, with the goal of eliminating hepatitis C as a public health threat statewide. The Subscription Model provides unrestricted access to treatment through a multi-strategy Elimination Program aimed at identifying Louisianans with hepatitis C infection and linking them to providers able to guide them successfully through treatment.
The Hepatitis C Elimination Program will:
- Expand provider capacity to treat hepatitis C
- Educate public on availability of cure and mobilize priority populations for screenings
- Expand HCV screening and expedited linkage to HCV cure
- Strengthen HCV surveillance to link persons previously diagnosed to treatment
- Implement harm reduction and complementary treatment strategies
- Extend elimination efforts to all populations within the state
Planning for State Viral Hepatitis Elimination Programs
The Minnesota Department of Health- Hepatitis Unit is convening local public health, community leaders, healthcare providers, individuals affected by viral hepatitis and other stakeholders to review current hepatitis B and hepatitis C epidemiological trends in Minnesota to identify data gaps. The Hepatitis Unit will then work with stakeholders to develop hepatitis B and C epidemiological profiles to minimize the local hepatitis disease burden and work toward elimination.
New York State (NYS) Hepatitis C Elimination Task Force
In March 2018, New York State (NYS) made a commitment to eliminate hepatitis C as a public health problem by allocating $5 million to implement new programs and activities and establishing a task force. The NYS Hepatitis C Elimination Task Force will provide input to the NYS Department of Health on the hepatitis C elimination plan. Task Force members include key stakeholders representing government, private industry, consumers, and community leaders who are hepatitis C experts. The Task Force is supported by five workgroups: 1) Hepatitis C prevention; 2) Hepatitis C care and treatment access; 3) Hepatitis C testing and linkage to care; 4) Surveillance, data and metrics; and 5) Social determinants. The additional funding will support: patient navigation programs; innovative care models to address barriers people who inject drugs face when accessing hepatitis C treatment; reentry and peer programs for incarcerated individuals; surveillance infrastructure; and a multi-media campaign. https://www.health.ny.gov/diseases/communicable/hepatitis/hepatitis_c/elimination.htm
Hepatitis C in Native Oklahoma: Optimizing Care and Setting a Path Towards Elimination of Disease and Disparity
The goal of the Cherokee Nation hepatitis C (HCV) initiative is to eliminate HCV from the Cherokee Nation Health Services (CNHS) and improve the health of American Indians in the CNHS by developing a community-based program to test, treat, and cure HCV, coupled with public awareness efforts to reduce new HCV infections. The program is based on universal screening, increasing the number of primary care providers who are managing individual with HCV by utilizing projectECHO, and expansion of harm reduction. The project will also include data collection and analysis to help understand how many people may have HCV, determine risk factors for acquiring HCV, and provide evidence to inform future efforts to eliminate HCV.
Hep C Free Allegheny
Formed in 2018, “Hep C Free Allegheny” is a campaign spearheaded by several major health and social service agencies in Allegheny County, Pennsylvania. Its vision is a county in which coordinated efforts result in the prevention of new hepatitis C infections, timely identification of those already infected with subsequent linkage to treatment, and the elimination of hepatitis C-related health inequities. Reducing the stigma that is sometimes associated with hepatitis C infection is an important component of these efforts. Hep C Free Allegheny is currently guided by a Steering Committee and four workgroups.
C Change, a partnership between the Hepatitis C Allies of Philadelphia (HepCAP) and the Philadelphia Department of Public Health (PDPH), is a project to eliminate hepatitis C virus (HCV) among people who use drugs in Philadelphia. Guided by the belief that everyone deserves a cure, C Change is working to transform HCV care delivery by building flexible, low threshold models of integrated care. C Change provides direct patient services, clinical training, and infrastructure support to build treatment capacity in settings not traditionally treating HCV. Currently, C Change works in collaboration with Prevention Point Philadelphia, the city’s syringe service program (SSP), the Stephen Klein Wellness Center, a Federally Qualified Health Center (FQHC), and Merakey Parkside, an outpatient medication assisted treatment program for substance use disorder.
Philadelphia Hepatitis B Virus Infection Prevention, Vaccination, Navigation, Testing, and Treatment Elimination Program (HBV PreVNTT)
In July 2019, the Philadelphia Department of Public Health (PDPH) received funding from the Office of Minority Health for a Hepatitis B virus (HBV) elimination demonstration project: Philadelphia Hepatitis B Virus Infection Prevention, Vaccination, Navigation, Testing, and Treatment Elimination Program (HBV PreVNTT). This project aims to address HBV among priority populations including individuals from East/Southeast Asia and Sub-Saharan Africa, pregnant persons, and people who use drugs. This program uses surveillance data to tailor interventions to communities and settings most affected by hepatitis B and partners with community-based organizations to create sustainable, longitudinal change at the city, clinic, and patient level. Citywide interventions encompass a multi-pronged approach including:
- education of communities most at risk, providers, pharmacists and medical students;
- continuous quality improvement processes prioritizing cultural competency, and HBV vaccination, screening, and linkage to care;
- an online HBV education module available to all networked providers at a large area health system;
- patient navigation to assist in linking individuals living with HBV who are out of care and/or pregnant to a specialist for monitoring and treatment; and
- screening and vaccination events in highly affected communities.
Utah Department of Health
This year (2019), the Utah Department of Health (UDOH) is in the initial stages of hepatitis elimination planning and was recently awarded an ASTHO grant to begin work on these activities. Current UDOH elimination activities include working with the Center for Disease Analysis Foundation (CDAF) to develop a Utah-specific disease progression model for hepatitis C, participating in a regional meeting to begin hepatitis elimination planning, and participating in monthly ASTHO peer-to-peer learning opportunities for hepatitis elimination
Collaborative care model for HCV micro-elimination in rural Appalachia
The University of Virginia (UVA) and Virginia Department of Health (VDH) are working together in an innovative partnership to expand HCV treatment for rural populations across Virginia using a telehealth and provider education model (HEPC). The HEPC Program was established in far Southwest Virginia with a focus on regional micro elimination, and, recognizing the connection between opioid use and hepatitis C transmission, prioritizing the care of those in treatment for opioid use disorder or actively using drugs. Patients are linked to office based opioid treatment programs and harm reduction services as needed. The HEPC Program continues to grow to expand access throughout the state. Tmk2s@virginia.edu
Hep C Free Elimination Plan
The Washington State Department of Health (DOH) has convened the Hep C Free Washington coordinating committee and three topic-specific work groups, Data & Strategic Information, Community-Based Responses & Interventions, and Clinical Strategies, in order to develop a plan to eliminate the public health threat of hepatitis C in Washington State by 2030. As part of that plan, the Department of Health is working with partners to bolster efforts to ensure those living with hepatitis C know their status and are connected to care and the cure, and that those at risk have access to preventive services. Complementary to the elimination plan development, Washington State's Health Care Authority (HCA) is leading a first-in-nation comprehensive procurement of hepatitis C medications purchased by state agencies (including Medicaid, the Department of Corrections, and other state agencies) to get the best prices from manufacturers and ensure that curative treatment is more readily available to all people living with hepatitis C in Washington State.
Tacoma-Pierce County Health Department
Tacoma-Pierce County Health Department (TPCHD) takes a department-wide approach to hepatitis B and C (HBV & HCV). Coordinated case identification occurs within multiple programs: Refugee Health, STD/HIV, Methadone Treatment and Tuberculosis as well as the Dave Purchase Project (a community-based syringe exchange).
In 2018 the Viral Hepatitis program added to existing perinatal hepatitis B work by creating a perinatal hepatitis C program. The immediate goal of this program is to establish a routine RNA test for babies exposed in-utero to HCV, especially since current data show that most exposed babies remain untested. The long-term goal is to decrease the percent of women actively infected with HCV during pregnancy. This will be achieved by:
- Recommending universal HCV screening for pregnant women.
- Increasing awareness of perinatal transmission among providers.
- Encouraging HCV treatment for women who are not pregnant.
A variety of tools have been created for providers to use with patients.
Hepatitis B Initiative of Washington DC (HBI-DC) is a 501(c)(3) nonprofit organization that works to eliminate liver cancer caused by hepatitis B and hepatitis C among persons of Asian, Pacific Islander, and African descent, and other high-risk groups. HBI-DC provides culturally and linguistically appropriate viral hepatitis outreach, education, screening, hepatitis B vaccination, linkage to care, and patient navigation services for impacted communities in Maryland, Virginia, and Washington DC. Complete hepatitis B and hepatitis C testing and diagnosis are provided free to participants. HBI-DC links participants to care and provides navigation services in multiple languages to help access treatment and patient assistance programs for uninsured and low-income participants. HBI-DC has developed a comprehensive network of primary care providers, clinics, and hospitals that aid patients in navigating the health care system.
HepConnect, a five-year, multi-million-dollar initiative is aimed at addressing the sharp increase in chronic hepatitis C virus (HCV) infections fueled by the nation’s opioid crisis. In partnership with the Harm Reduction Coalition (HRC) and local organizations, the initiative will support evidence-based solutions to meet the needs of people most affected by the opioid crisis in Indiana, Kentucky, North Carolina, Tennessee, and West Virginia.
Veterans Integrated Service Network (VISN) 12
VISN 12 has worked with several community harm reduction centers in the Danville and Chicago areas to improve education, knowledge and linkage to care for services to veterans and their partners. The organization collaborated across different agencies including the Illinois Department of Health and the American Liver Foundation (Great Lakes Division). Providers utilize a national electronic tool (developed by VISN 12 in collaboration with several other networks) to help identify high risk patients for HCV screening as well as patients with chronic HCV. The network of infectious disease, liver providers and primary care providers communicate on a frequent basis to re-engage patients for a variety of services in order to educate, stabilize and offer curative regimens. VISN 12 includes portions of Wisconsin, Michigan, Illinois, and Indiana.
Asian Liver Center
Founded in 1996 by Dr. Samuel So, the Asian Liver Center at Stanford University is the first non-profit organization in the United States to address high rates of hepatitis B in Asians and Asian Americans. The Center addresses gaps in the fight against hepatitis B through:
- CARE: Collaboration, Advocacy, Research, and Education/Outreach;
- Programmatic focus areas including research; newborns and chronically infected mothers; youth; community; corporate employees; media; and international policy; and
- JoinJade, a universal campaign created by the Center in 2001 to end hepatitis B transmission, deaths, and discrimination.
The Center’s ultimate goal is to:
- Eliminate the transmission and stigma of hepatitis B; and
- Reduce deaths from liver cancer and liver disease caused by chronic hepatitis B.
ATTC Network Coordinating Office, HCV Current Initiative
The Addiction Technology Transfer Center (ATTC) Network Coordinating Office is national in scope and works closely with the network of Regional ATTCs to develop and cross promote training resources. The ATTCs established a hepatitis C initiative, HCV Current, to increase knowledge of HCV among medical and behavioral health professionals to address hepatitis C increases among people with mental health and substance use disorders which is a critical aspect of elimination in the United States.
Curing Hepatitis C among HIV/HCV Coinfected People of Color
This multi-pronged initiative supports the expansion of Hepatitis C (HCV) prevention, testing, care, and treatment capacity, the improvement of linkage and retention to HCV care, and coordination with SAMHSA-funded substance use disorder (SUD) treatment providers to deliver behavioral health and SUD treatment support to achieve treatment completion and prevent HCV infection and re-infection. Recipients will also enhance their health department surveillance systems to increase their capacity to monitor acute and chronic infections of HIV and HCV.
- University of Texas Health Science Center at San Antonio (location: South Texas)
- Yale University (location: Connecticut)
Department of Veterans Affairs (VA)
The Department of Veterans Affairs (VA) leads the country in hepatitis C screening, testing, treatment, research and prevention. As of March 2019, VA has started nearly 120,000 eligible Veterans on treatment.
Gilead’s FOCUS program was created to enable partners to develop and share best practices in routine blood-borne virus (HIV, Hepatitis C, Hepatitis B) screening, diagnosis, and linkage to care in accordance with screening guidelines recommended by the U.S. Centers for Disease Control and Prevention (CDC), the U.S. Preventive Services Task Force (USPSTF), and state and local public health departments. FOCUS works with partners to overcome stigma related to viral testing, reduce the number of undiagnosed individuals, decrease the number of those who are diagnosed too late, and foster linkage to care.
Help-4-Hep is a non-profit, peer-counselor, nation-wide helpline. Anyone can call with questions about hepatitis C or to get referrals to a doctor or clinics that test, treat and managing hepatitis C. Resources for financial assistance to help pay for treatment are also available. Callers are offered an opt-in service for follow-up assistance. I.E.; a counselor will call back at a designated time to help guide the caller through the continuum of care. The phone call, support and information are all provided free of charge.
Hep B United
Hep B United is a national coalition co-chaired by the Hepatitis B Foundation and the Association of Asian Pacific Community Health Organizations supporting local hepatitis B elimination efforts in the United States. Comprised of more than 40 national organizations and local hepatitis B community coalitions across 20 states, Hep B United is dedicated to reducing hepatitis B health disparities by increasing awareness, screening, vaccination, and linkage to care for high-risk communities. Hep B United network activities include resource-sharing, training seminars, annual national hepatitis B summits, the first national community-based hepatitis B strategic plan, a hepatitis B storytelling initiative, technical assistance, peer mentoring, fostering hepatitis B data collection and analysis, and partnering with the CDC to co-brand and launch “Know Hepatitis B” campaign. Hep B United partners screen 20,000 - 40,000 people annually for hepatitis B infection and since 2013, conducted over 70,000 education sessions.
HepVu provides users with data, interactive maps, and educational resources that illustrate the impact of viral hepatitis at the state-level. All data available on HepVu are derived from systematic, high-quality, public sources, and the site will continue to add new data and features as they become available. Currently, HepVu maps standardized, state-level hepatitis C prevalence estimates generated by the Emory University Coalition for Applied Modeling for Prevention (CAMP) project, a collaborative effort with researchers from CDC. HepVu also maps state-level hepatitis C-related mortality and state-level opioid indicators that help illustrate the relationship between viral hepatitis and the opioid epidemic and support elimination plan development.
The Indian Health Service (IHS)
The National Viral Hepatitis Action Plan identifies American Indians and Alaska Natives as a high priority population. Among American Indian and Alaska Native people, HCV related mortality remains more than double the national rate.
The Indian Health Service (IHS) could eliminate HCV by the year 2025 by providing treatment to 11,000 patients per year over the next four years. To reach this lofty goal, the IHS National HCV Workgroup recommended universal HCV screening, and all IHS direct care facilities are establishing and implementing universal HCV screening and treatment protocols in a strategic manner. In addition, the IHS recently added three HCV Direct Acting Antivirals to its National Core Formulary.
Jurisdictional Approach to Curing Hepatitis C among HIV/HCV Coinfected People of Color
This initiative supports jurisdictions to increase jurisdiction-level capacity to provide comprehensive screening, care, and treatment for hepatitis C (HCV) among HIV/HCV coinfected RWHAP clients and thus, increase numbers of HIV/HCV coinfected people who are diagnosed, treated, and cured of HCV infection. The ultimate goal of the initiative is to create comprehensive HCV screening, care and treatment systems leading to demonstrable improvements in HCV care outcomes among HIV coinfected people. The funded programs are:
- City of Hartford, CT
- City of New York, NY
- City of Philadelphia, PA
- Louisiana Department of Health
- North Carolina Department of Health and Human Services
Under Gilead’s HCV and HIV/HCV Co-infection ISR programs, the LEGA-C platform, “Local Elimination Programs Leading to Global Action in HCV,” includes the programs CITE, SCALE, CHIME, STAT, and NoCo. To date, Gilead has committed $50M to support 79 elimination projects around the world through LEGA-C. Among the LEGA-C projects, 27 out of 79 support patients with unmet needs in the United States.