Skip to main content
U.S. flag

An official website of the United States government

Return to Search

FAQ 1502 Since the HIPAA Privacy Rule protects a decedent’s health information only for 50 years following the individual’s death, does my family health history recorded in my medical record lose protection when it involves family members who have been de

This is information pertaining to family health information and HIPAA.

Final

Issued by: Office for Civil Rights (OCR)

Since the HIPAA Privacy Rule protects a decedent’s health information only for 50 years following the individual’s death, does my family health history recorded in my medical record lose protection when it involves family members who have been deceased for more than 50 years?

Answer:

No. When a covered health care provider, in the course of treating an individual or otherwise, collects an individual’s family health history, this information becomes part of the individual’s medical or other record and is treated as protected health information about the individual and not about the family member(s). Thus, even where an individual’s family health history includes information about family members who have been deceased for more than 50 years, the information is protected under the Privacy Rule as the health information of the individual.

HHS is committed to making its websites and documents accessible to the widest possible audience, including individuals with disabilities. We are in the process of retroactively making some documents accessible. If you need assistance accessing an accessible version of this document, please reach out to the guidance@hhs.gov.

DISCLAIMER: The contents of this database lack the force and effect of law, except as authorized by law (including Medicare Advantage Rate Announcements and Advance Notices) or as specifically incorporated into a contract. The Department may not cite, use, or rely on any guidance that is not posted on the guidance repository, except to establish historical facts.