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Resources for Youth with Disabilities, Families, & Professionals

In addition to the lists below, find federal resources on chronic conditions and disabilities in the Adolescent Health Library.

For Adolescents with a Chronic Condition

For Parents and Families

  • Understood focuses on youth with learning and attention disorders and offers parents many guides for advocating for their child’s education and working with schools to get the right accommodations. The Decision Guide is a series of quizzes to help you organize your thoughts about school choices, school services, and other aspects of life that could be difficult to navigate. How IDEA Protects You and Your Child helps parents understand the Individuals with Disabilities Education Act, identify the special education services available to their child, and take steps to develop an Individual Education Program.
  • Wrightslaw is a resource for parents, educators, advocates, and attorneys to find accurate, reliable information about special education law and advocacy for youth with disabilities.
  • Parent to Parent USA is a program for parents of children who have special healthcare needs and who are seeking information and emotional support. Parents are carefully matched with a trained Support Parent who can offer guidance, resources, and support.

For Educators

  • Tool of the Week is regularly updated by the Council for Exceptional Children to feature free special education resources.
  • Five Questions Parents and Educators Can Ask can be used to guide conversations about a child’s challenges in school. Use it to understand parents’ ideas about acceptable language for describing and discussing specific learning disabilities.

For Healthcare Providers

  • Got Transition is a hub of information and resources for healthcare providers on the transition process to adult healthcare. The Six Core Elements of Health Care Transition 2.0 informs a practice resource on integrating youth with intellectual and developmental disabilities into healthcare offices.
  • Patient-Centered Medical Home Resource Center is a resource for healthcare practices that houses tip sheets, briefs, curriculum, and other materials that can be used to build capacity for transitions of primary care.
  • Blueprint for Adolescent and Young Adult Health Care was developed based on the success of Mount Sinai Adolescent Health Center. This guide is a road map to providing integrated care that is youth-friendly and patient-centered.

For Service Providers


Content created by Office of Adolescent Health
Content last reviewed on July 22, 2019