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CFSAC Recommendations: January 12-13

Supporting the Pediatric Needs of Educating Students

Working Group Chair Dr. Faith Newton, Delaware State University

  • Evaluate the need and feasibility for a cooperative effort by HHS and DOE to improve physicians awareness of their role in assisting Pediatric CFS patients and their families to acquire appropriate special services through the schools.
  • Evaluate the need and feasibility for a cooperative effort by HHS and DOE to promote a greater understanding by school nurses of the symptoms of Pediatric CFS, and the accommodations or modifications most likely to support these children in being academically successful.

Working Group Participants

  • Faith Newton (Working Group Chair, CFSAC)
  • Beth Unger (CDC)
  • Alisa Koch (CFSAC)
  • Ken Friedman (Advocate)
  • Carmen Sanchez USDOE, Office of Special Education Programs)
  • Steve Krafchik (CFSAC)
  • Vicky Whittemore (NINDS)

In order to improve health care providers’ awareness of their role in assisting Pediatric ME/CFS patients and their families to acquire appropriate special services through the schools.

CFSAC recommends that: In acknowledgement of the serious educational implications of ME/CFS in children and adolescents, an ex-officio member from the US Dept of Education be added to CFSAC. We further recommend that this individual be well-versed in the provision of accommodations and services under Section 504 of the Civil Rights Act and the special education services under the Individuals with Disabilities in Education Act (IDEA).

OASH Response: The Office on Women’s Health will be working with the OASH Committee Management Officer to revise the current CFSAC charter to include an ex officio from the Department of Education.

CDC coordinate with the US Dept of Education on the dissemination of information on Pediatric ME/CFS to all Parent Information Centers.

CDC Response: The ME/CFS program fully agrees with CFSAC recommendations and is working towards implementation. CDC has initiated email correspondence with Carmen Sanchez (Department of Education) and Beth Mattey (National Association of School Nurses) to plan next steps. Progress will be included in CDC’s report to CFSAC.

CDC and the National Association of School Nurses collaborate to develop and disseminate educational materials on ME/CFS as it affects children and adolescents.

CDC Response: The ME/CFS program fully agrees with CFSAC recommendations and is working towards implementation. CDC has initiated email correspondence with Carmen Sanchez (Department of Education) and Beth Mattey (National Association of School Nurses) to plan next steps. Progress will be included in CDC’s report to CFSAC.

Content created by Office of the Assistant Secretary for Health (OASH)
Content last reviewed on April 28, 2017