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June 20-21, 2018 CFSAC Meeting (Webinar)

June 20, 2018 - June 21, 2018

200 Independence Avenue, SW, Suite 727E, Washington, DC 20201

Agenda

Day 1

June 20, 2018

TIME AGENDA ITEM SPEAKER
9:00 a.m. Call to Order
Roll Call
Logistics
CDR Gustavo Ceinos, M.P.H., Designated Federal Official
9:10 a.m. Opening Remarks ADM Brett P. Giroir, M.D., Assistant Secretary for Health
Nicole Greene, Acting Director, OWH
Faith Newton, Ed.D, Chair, CFSAC
9:20 a.m. Approval of minutes from last CFSAC meeting CFSAC Members
9:30 a.m. Updates on implementation of recommendations from last CFSAC meeting CDR Gustavo Ceinos, M.P.H., Designated Federal Officer
Faith Newton, Ed.D, Chair, CFSAC
9:45 a.m. Agency Updates and Questions Centers for Disease Control and Prevention: Ermias Belay, M.D
Agency for Healthcare Research & Quality: Theodore Ganiats, M.D.
Social Security Administration: Michael Goldstein
11:00 a.m. Presentation from Liaison Organizations Simmaron Research, Inc: Courtney Miller
Massachusetts CFIDS/ME & FM Association: Leah Williams
ME Action: Terri Wilder
12:00 p.m. Lunch  
1:00 p.m. Public Comments Members of the Public
2:00 p.m. Discussion of public comments CFSAC Members
2:15 p.m. Update from the Medical Education Work Group Medical Education Work Group: Lucinda Bateman, M.D., Work Group Chair
3:00 p.m. Break  
3:15 p.m. Research Update on Pediatric ME/CFS Peter Rowe, M.D., Division of General Pediatrics and Adolescent Medicine, Johns Hopkins University School of Medicine
4:00 p.m. Recommendations and next steps All
5:00 p.m. Adjourn  

*Final agenda subject to change due to availability of speakers

Day 2

June 21, 2018

9:00 a.m. to 5:00 p.m. (EDT)

TIME AGENDA ITEM SPEAKER
9:00 a.m. Call to Order
Roll Call
CDR Gustavo Ceinos, M.P.H., Designated Federal Official
9:10 a.m. Opening Remarks Faith Newton, Ed.D, Chair, CFSAC
9:20 a.m. Agency Updates and Questions National Institutes of Health: Vicky Whittemore, Ph.D
Department of Defense: LTC Christopher L Tracy M.D., FACP, FACR
Department of Veteran Affairs: Drew A. Helmer, M.D., M.S.
11:30 a.m. Update from the Pediatric Education Work Group and Parent Information Center Faith Newton, Ed.D, Chair, CFSAC
Carmen Sanchez, Education Program Specialist, US Department of Education
12:00 p.m. Lunch  
1:00 p.m. Research Update on Adults ME/CFS Derya Unutmaz, M.D., Jackson Laboratory for Genomic Medicine Farmington, CT
2:00 p.m. Break  
2:15 p.m. Update from the Clinical Trials and Treatment Work Group Amrit Shahzad, MBBS, MBA, CFSAC Member
3:00 p.m. Agency Updates and Questions Food and Drugs Administration: Silvana Borges, M.D.
Health Resources & Services Administration: TBD
3:30 p.m. Public Comments Members of the Public
4:30 p.m. Discussion of public comments CFSAC Members
4:45 p.m. Next steps All
5:00 p.m. Adjourn  

*Final agenda subject to change due to availability of speakers