• Text Resize A A A
  • Print Print
  • Share Share on facebook Share on twitter Share

December 13-14, 2017 CFSAC Meeting (In Person)

December 13, 2017 - December 14, 2017

This Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting took place at the Hubert H. Humphrey Building, 200 Independence Avenue, Suite 800, S.W., Washington, D.C. 20201.

Agenda

Day 1
December 13, 2017
9:00 a.m. to 3:30 p.m. (EST)

TIME AGENDA ITEM SPEAKER
9:00 a.m. Call to Order
Roll Call
Logistics
CDR Gustavo Ceinos, MPH
Designated Federal Officer
9:10 a.m. Opening Remarks Faith Newton, Ed.D
Chair, CFSAC
Nicole Greene
Acting Director, OWH
Don Wright, M.D., M.P.H.
Acting Assistant Secretary for Health
9:25 a.m.

Swear In two of three new CFSAC Members

Lucinda Bateman, M.D.
Amrit Shahzad, MBBS, MBA
Don Wright, M.D., M.P.H.
Acting Assistant Secretary for Health
9:30 a.m. Approval of minutes from the last CFSAC meeting CFSAC Members
9:45 a.m. Updates of implementation of recommendations from the last CFSAC meeting CDR Gustavo Ceinos, M.P.H.
Designated Federal Officer

Ermias Belay, M.D.
Centers for Disease Control and Prevention
10:00 a.m. Agency Updates and Questions Centers for Disease Control and Prevention
Ermias Belay, M.D.
Food and Drugs Administration
Keith Hull
Social Security Administration
Michele Schaefer
11:00 a.m. Presentation from Liaison Organizations Simmaron Research, Inc
Courtney Miller
Massachusetts CFIDS/ME & FM Association
Leah Williams
ME Action
Terri Wilder
11:45 a.m. Report from the Medical Education Work Group Gary Kaplan, M.D.
Working Group Chair
12:30 p.m. Lunch  
1:30 p.m. Discussion Medical Education Work Group
Presentation and Recommendations
CFSAC Members
2:30 p.m. Public Comments Members of the Public
3:30 p.m. Adjourn  

*Final agenda subject to change due to availability of speakers

Day 2
December 14, 2017
9:00 a.m. to 5:00 p.m. (EST)

TIME AGENDA ITEM SPEAKER
9:00 a.m. Call to Order
Roll Call
CDR Gustavo Ceinos, MPH
Designated Federal Official
9:10 a.m. Opening Remarks Faith Newton, Ed.D
Chair, CFSAC
9:20 a.m. Agency Updates National Institutes of Health Vicky Whittemore, Ph.D
Health Resources & Services Administration
CAPT Sophia Russell, DM, MBA, RN
Agency for Healthcare Research & Quality
Theodore Ganiats, M.D.
Department of Veteran Affairs
Drew A. Helmer, M.D., M.S.
11:00 a.m. Public Comments Members of the Public
12:00 p.m. Lunch  
1:00 p.m. Report from the Pediatric Education
Working Group and Parent Information
Center Update
Faith Newton, Ed.D
Chair, CFSAC
Carmen Sanchez
Education Program Specialist
US Department of Education
1:45 p.m. Break  
2:00 p.m. Research Update on Adults ME/CFS Jose Montoya, M.D.
CFSAC Member
3:00 p.m. Research Update on Pediatric ME/CFS (Calling in) Rosamund Vallings, M.D.
Invited Speaker
Howick Health and Medical
Auckland, New Zealand
4:00 p.m. Closing Remarks and Next Steps Faith Newton, Ed.D
CDR Gustavo Ceinos, M.P.H.
5:00 p.m. Adjourn  

*Final agenda subject to change due to availability of speakers