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August 18-19, 2015 CFSAC Meeting

August 18, 2015 - August 19, 2015


Day 1 - August 18, 2015, 9:00 a.m. to 5:00 p.m.

Time Topic Presentation
9:00 a.m. Welcome, Call to Order, Roll Call
Opening Remarks
Susan Levine, M.D.
9:20 a.m. Housekeeping Nancy C. Lee, M.D.
Designated Federal Officer (DFO)
9:30 a.m. Agency Updates SSA, CDC, NIH
10:15 a.m. IOM Study Process and Report,
Q&A for Committee
Nancy Klimas, M.D.
11:15 a..m. Public Comment Public
12:15 p.m. Lunch  
1:00 p.m. IOM/P2P Workgroup
Report and Recommendations
Donna Pearson, Workgroup Chair
Workgroup Members
2:45 p.m. Break  
3:00 p.m. Committeee Discussion
IOM/P2P Report and Recommendations
Committee Members
4:00 p.m. Open Forum Persons in attendance
5:00 p.m. Adjourn  

Day 2 - August 19, 2015, 9:00 a.m. to 5:00 p.m.

Time Topic Presentation
9:00 a.m. Call to Order
Roll Call

Susan Levine, M.D., Chair

Nancy C. Lee, DFO

 9:15 a.m. Agency Updates AHRQ, FDA, HRSA, CMS
10:00 a.m. Public Comments Public
11:00 a.m. Break  
11:15 a.m. Patient Registry Workgroup
Report and Recommendations
Faith Newton, Workgroup Chair
Workgroup Members
11:45 a.m. Committee Discussion
Patient registry report and
Committee members
12:15 p.m.  Lunch  
1:15 p.m. Update from Liaison Organization
Representatives from IACFS/ME, Solve
ME/CFS Initiative
1:30 p.m. Committee’s consideration of
Questions from HHS
Nancy C. Lee, DFO
Committee members
2:30 p.m. Finalize Recommendations from both
Committee members
3:45 p.m.  Break  
4:00 p.m.  New Workgroups: Ideas and Planning Committee members
5:00 p.m. Adjourn