HHSignite (beta): Recruiting Older Adults into Research (ROAR)
Submitted by staff from: ACL / Administration on Aging + NIH / Nat’l Institute on Aging + CDC
- Amy Wiatr-Rodriguez, ACL / AoA
- Jennifer Watson, NIH / NIA
- Nina Silverberg, NIH / NIA
- Jane Tilly, ACL / AoA
- Kate Gordon, ACL / AoA
- Angela Deokar, CDC / ONDIEH
Project Lead’s Approving Supervisor:
Aviva Sufian, Administration for Community Living
Support a cross-departmental partnership to improve the recruitment of older adults for clinical research, beginning with Alzheimer’s.
Insufficient participant recruitment for research can delay or cause trial cancellation, a substantial waste of resources. The need for Alzheimer’s clinical trials participants is urgent: tens of thousands of volunteers are needed for trials seeking treatments to join with researchers to delay or prevent this growing public health problem.
Through ROAR, multiple HHS entities and their networks of state and community-based agencies will collaborate with grantees and private organizations to enhance knowledge and connect gatekeepers and older adults with easy, actionable opportunities for research participation. Crowdfunding/sourcing to implement campaign components and expand the campaign beyond Alzheimer’s research will be explored.
They are reaching out to existing government-funded resources and registries such as ResearchMatch, a free, national recruitment registry funded in part by NIH; and the Alzheimer’s Assocation’s TrialMatch service.
Their goal is to increase Alzheimer’s research participation inquiries by 25%. The lessons learned from this effort can be carried over to outreach for clinical trials for other conditions.
This proposal builds off of the success of an HHSinnovates award: Connecting to Combat Alzheimer’s was recently a Secretary’s Pick and won the People’s Choice Award. The ACL and the Nat’l Institute on Aging (NIA) have added CDC to the team.