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U.S. Department of Health & Human Services
Initiative ~ Executive Order ~ HHS Role ~ News & Additional Resources Delivering on the Promise
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| When I was young, I was placed in an institution because my mother was unable to look after me. I have Cerebral Palsy.... They told me what to do and what not to do. And for me, that wasn't living a good lifestyle. Now I live in the community. I'm learning to be independent and live my own life. -- Testimony at Sept. 5, 2001, National Listening Session. |
The Department of Justice successfully argued to the Supreme Court in Olmstead, and to lower courts in previous cases, that unnecessary institutionalization of individuals with disabilities is a form of disability-based discrimination prohibited by title II. See Helen L. v. Didario, 46 F.3d 325 (3rd Cir.), cert. denied, 516 U.S. 813 (1995); Williams v. Wasserman, 937 F. Supp. 524 (D. Md. 1996).
The Department has continued to further the ADA's goal of integration in the aftermath of the Olmstead decision. The Department filed an amicus curiae brief in Newberry v. Menke (M.D. Tenn.), arguing that individuals who reside in the community, but who are at risk of institutionalization, have standing to challenge aspects of a Tennessee Medicaid program that allegedly create incentives for institutionalization in violation of title II's integration requirement.
Access to housing is critical to furthering the goals of Olmstead. Most of the Department's enforcement regarding accessible housing falls under the Fair Housing Act, discussed below. Some housing-related issues are also covered by the ADA. The Department has enforced titles II and III of the ADA with respect to discriminatory zoning, leasing, and permitting practices that affect facilities serving or housing individuals with disabilities.
The Department successfully argued that zoning is covered by title II of the ADA. In Innovative Health Systems, Inc. (IHS) v. City of White Plains, 117 F.3d 37 (2nd Cir. 1997), for example, the Department filed an amicus curiae brief supporting the plaintiffs' efforts to stop the City of White Plains, New York, from preventing them from operating an alcohol and drug dependency treatment program in the downtown area. The United States Court of Appeals for the Second Circuit ruled that the ADA covers all of the activities of State and local government, including zoning practices.
In other cases in which municipalities have attempted, through zoning or permitting practices, to prevent services or accessibility renovations by entities, the Department has supported challenges to the discriminatory practices. In Kennedy v. Fitzgerald (N.D.N.Y. 2000), for example, the Department filed an amicus curiae brief alleging that the city was violating title II by maintaining and implementing a policy of refusing to permit businesses to encroach on city sidewalks for the purpose of installing wheelchair ramps. In another matter, the Department successfully argued that an organization intending to operate a rehabilitation center for people with mental disabilities in the downtown area could challenge the town's opposition to its plans under the ADA. Pathways Psychological Support Center had been refused permission by the town to purchase a building and was later denied an occupancy permit by the town. See Pathways Psychological Support Center v. Town of Leonardtown, 1999 WL 1068488 (D. Md. 1999), 15 NDLR P 221 (1999).
| One of the greatest barriers to community treatment is the "not in my back yard" NIMBY syndrome. -- E-mail testimony of Aug. 23, 2001. |
The Department has also worked to prevent discriminatory leasing practices in circumstances affecting disability service providers. Under an agreement with the Department, a commercial real estate corporation that refused to lease office space in Northern Virginia to a nonprofit organization that serves persons with disabilities will no longer discriminate against people with disabilities and will take corrective action to ensure that it does not happen in the future. The leasing corporation owns, manages, and develops retail and office properties throughout the United States.
People with disabilities often must rely on public transportation systems to move about in the community. The ADA requires basic transportation services such as public transit services (including paratransit services), over-the-road buses, demand-response systems, rental cars, and taxi cabs to be accessible. The Department shares the enforcement responsibilities for public transportation with the Department of Transportation, which is responsible for investigating complaints and, where deemed necessary, referring unresolved complaints to the Department for litigation.
The Department has brought enforcement actions dealing with public transit services. In Richardson v. City of Steamboat Springs (D. Colo. 2000), the Department intervened and alleged that the City violated the ADA by purchasing inaccessible used buses without first making the required good faith effort to purchase accessible buses, by neglecting to repair inoperable wheelchair lifts and to provide alternative transportation when wheelchair lifts were inoperable, and by not adequately training bus drivers in the operation of wheelchair lifts. The Department resolved the case by consent decree. In another case, James v. Peter Pan Transit Management, Inc., 14 NDLR P 254 (E.D.N.C.1999), the Department filed an amicus curiae brief to challenge the inaccessibility of the Raleigh, North Carolina bus system to people who use wheelchairs. The Department successfully argued that the public transit authority may be held liable under title II for discrimination by a private company that provides bus service to the public under a contract with the transit authority. The Department has been involved in similar actions in Chicago and Philadelphia.
Some individuals who are moving from institutions to community settings may also use taxi services. The Department has resolved a number of complaints regarding taxi drivers who were unwilling to serve individuals who use wheelchairs, as well as individuals who use service animals. In addition, some individuals with disabilities will also experience difficulty traveling in private cars when they are unable to refuel because many gas stations are inaccessible. To address this problem, the Department has issued technical assistance documents that make it clear that the ADA requires gas stations to ensure equal access to their customers with disabilities by providing refueling assistance to individuals with disabilities, on request, without any charge beyond the self-service price.
Having full access to all necessary health care and social support services is essential for individuals moving from institutions into communities. The Department has worked vigorously to ensure the accessibility of a variety of health care services to individuals with disabilities. Some of the public input solicited in execution of the Executive Order indicated that some individuals with disabilities, especially those with mental retardation and mental illness, may have difficulty obtaining dental services. The Department has prevailed in a number of cases dealing with dentistry and discriminatory policies that prevented treatment of individuals with certain types of disabilities, most notably individuals with HIV and AIDS. In another Supreme Court case, Bragdon v. Abbott, 524 U.S. 624 (1998), the United States prevailed as amicus curiae in ensuring that dental services are accessible to individuals with HIV and AIDS. The Department has taken this position in a variety of lawsuits, as well as having negotiated consent decrees with dental providers. See also United States v. Morvant, 898 F. Supp. 1163 (E.D. La. 1995); United States v. Castle Dental, Civ. No. H-93-3140 (S.D. Tex. 1993).
The Department has embarked upon an ambitious, nationwide campaign to improve communications access in our nation's hospitals for people who are deaf, are hard of hearing, or have speech disabilities. This initiative started with the Department's intervention in Connecticut Association of the Deaf v. Middlesex Memorial Hospital, a lawsuit brought by the Office of Protection and Advocacy in Connecticut against 10 acute-care hospitals for failing to provide sign language and oral interpreters for persons who are deaf or hard of hearing. In a consent decree joined by all acute- care hospitals in the State of Connecticut, the hospitals agreed to set up a State-wide, on-call system to provide interpreters 24 hours a day, seven days a week, for persons who are deaf or hard of hearing. The Department has used this model for enforcement in other States and communities across the nation. See, e.g., DOJ's April 2001 settlement agreement with Advocate Ravenswood Hospital Medical Center in Illinois (to be posted soon at www.usdoj.gov/crt/ada/adahom1.htm).
The Department has also been involved in ensuring accessibility of counseling services for individuals with disabilities, perhaps the single most critical component of the health care services for the population of individuals implicated by Olmstead. In one example, again involving communications barriers, the Department resolved a complaint with a private social services agency when the agency agreed to adopt written policies and procedures ensuring that consumers who are deaf will receive sign language interpreters without cost when participating in the agency's counseling programs. This agreement originated from a complaint in which the provider had required an individual who is deaf to pay the costs of sign language interpreter services at court-ordered counseling sessions.
Many children with disabilities may be at risk of being placed in segregated settings while parents are at work, if adequate and affordable mainstream child care is not available. Children may be institutionalized because of a lack of access to child care services. The right of individuals with disabilities to be provided care in the most appropriate setting for their needs was raised in Orr v. KinderCare (N.D. Calif.), a lawsuit challenging the exclusion of a nine-year-old boy because of his developmental disabilities, low vision, and mild seizure disorder, from its after-school program. After six months of serving Jeremy Orr in its two-year-old room, KinderCare argued that it could not meet his individualized needs in "a group care setting" largely because he would not initiate his own activities. The Department participated in the suit as amicus curiae. Under a consent decree resolving the lawsuit, KinderCare agreed to retain Jeremy Orr in its after-school program and allow him to be accompanied by an aide funded by the State. KinderCare also agreed to allow Jeremy Orr to attend the program in an age-appropriate classroom when the aide was present, and in the two-year-old room when the aide was not present.
The Department has been involved in other child care cases involving discrimination against children on the basis of disability. For example, the Department has vigorously enforced title III with respect to child care providers who exclude children based on their HIV-positive status. In one such case, the Department entered into a consent decree resolving a lawsuit filed against ABC Nursery, Inc. in Beloit, Wisconsin, for allegedly refusing to admit a three-year-old boy because he had tested positive for HIV.
In some situations, the problem of discrimination in child care settings results from the refusal of providers to assist in basic services or with medical needs that arise because of the child's disability. The Department reached an agreement resolving a complaint filed by the mother of a child with cerebral palsy against a child care center that had refused to put on and remove leg braces that the child needed to walk. In addition, the center attempted to keep the child with a younger age group because, due to her disability, she required diaper changing at a later age than other children at the center. In another example, the United States District Court for the Northern District of California in Alvarez v. Fountainhead, Inc., 55 F. Supp.2d 1048 (N.D. Cal. 1999), ordered a California child care center to modify its "no medications" policy and enroll a child who has asthma and uses an inhaler. Fountainhead Child Care Center prohibited teachers from assisting in the administration of any medication to children enrolled in its program. The Department argued as amicus curiae that the minimal monitoring and supervision required when Jeremy Alvarez used the inhaler would be reasonable and not fundamentally different from the responsibilities that all child-care operators have for the safety and well-being of their students. The Department has also addressed child care setting medication issues for children with diabetes and children with severe allergies.
The ADA's requirements regarding insurance are limited. Nevertheless, the Department has made strides in protecting individuals with disabilities from discriminatory insurance practices that often implicate the very population of individuals who will be moving into community settings as a result of the Olmstead initiative.
The Department has conducted a vigorous enforcement campaign to ensure that insurance policies themselves, and not just the physical office of insurance providers, are covered by title III of the ADA. Adopting the position articulated by the Department in an amicus curiae brief, the court in Wai v. Allstate Insurance, 75 F. Supp.2d 1 (D.D.C. 1999), held that title III prohibits discrimination in the terms and conditions of insurance policies and not just physical access to facilities. The Department's brief in Wai supported the position of a landlord who wanted to rent a single family house to an organization that would operate it as a group home for persons with mental retardation, but who was refused standard landlord property and casualty insurance. The landlord was told by the insurance companies that she must obtain more expensive commercial insurance for the house. While other courts similarly have held that ADA coverage reaches beyond physical offices spaces, see Carparts Distribution Center, Inc., v. Automotive Wholesaler's Association of New England, Inc., 37 F.3d 12 (1st Cir. 1994), some jurisdictions have not adopted the Department's position. See, e.g., Ford v. Schering-Plough Corp., 145 F.3d 601 (3rd Cir. 1998); Parker v. Metropolitan Life Ins. Co., 121 F.3d 1006 (6th Cir.1997).
In another case involving insurance for nursing home services, the Department resolved through settlement a complaint by an individual who is deaf who alleged that she was denied nursing home insurance solely because of her disability. The company agreed to reconsider her application for insurance and to develop a company policy for its employees and agents to ensure effective communication with customers who are deaf or hard of hearing. Finally, the Department intervened in a lawsuit alleging that an insurance company had terminated the auto insurance coverage of an individual because of his mild mental retardation. Under the consent decree resolving the suit, the insurance company agreed to pay substantial damages and civil penalties and to revise its policies so that it no longer considered the mental disability of an insured or applicant for insurance in deciding to grant or continue insurance coverage if a doctor has reported that the individual is able to drive safely.
Employment and access to training and vocational services is another important area affecting the Olmstead population. The Department has enforced the ADA against State and local government employers who have discriminated on the basis of disability. The Department's enforcement actions have involved laborers, clerks, nurses, police officers, fire fighters, dispatchers, and other public servants. Enforcement actions against private entities are handled by the Equal Employment Opportunity Commission, with no involvement by the Department.
Perhaps most critical to the population of individuals moving from institutions into the community was the United States Supreme Court's unanimous holding in Cleveland v. Policy Management Systems Corp., 526 U.S. 795 (1999), that courts should not give any special weight to the fact that an individual has applied for Social Security disability benefits in determining whether a plaintiff is a qualified individual with a disability in a title I employment suit. Applications for Social Security disability benefits generally require the individual to be unable to work. The Court agreed with the Department that because the qualification standards for Social Security and those under the ADA are different, application for or receipt of Social Security benefits is not by itself inconsistent with being a qualified individual with a disability.
Access to civic life is a fundamental part of American society. The Department's "Project Civic Access" is a wide-ranging effort to ensure that States, cities, towns, and villages comply with the ADA. As part of this ongoing initiative, the Department has reached comprehensive settlement agreements with 40 cities, towns, and counties.
Issues typically addressed in these settlement agreements include physical modifications of facilities to improve accessibility in government facilities such as city and town halls, police and fire stations, court houses, centers for health care delivery, child care centers, centers for teen and senior activities, libraries, and recreational centers. The agreements also address the effective communication of government services, reasonable policy modifications, and other key elements of title II.
Another of the Department's major initiatives in the area of government services was a nationwide effort to ensure that critical 9-1-1 services were accessible to individuals who are deaf or hard of hearing or who have speech disabilities. The Department undertook to ensure that 9-1-1 emergency services provide direct, equally effective access to TTY, or text telephone, users. Compliance reviews B investigations that are not triggered by specific allegations of discrimination B were conducted in over 500 locations in all 50 States by United States Attorneys' Offices in consultation with the Civil Rights Division. Where problems were found, the United States Attorneys offered technical assistance and negotiated agreements to bring those 9-1-1 systems into compliance. The Department has published "Americans with Disabilities Act Access for 9-1-1 and Telephone Emergency Services," outlining ADA requirements for providing direct access to emergency services for persons using TTYs.
Access to the facilities of merchants and a host of other private businesses is another important part of effective community placement of individuals with disabilities. Title III requires public accommodations to remove barriers to access for people with disabilities in existing facilities when doing so is readily achievable. The Department has vigorously enforced this provision with respect to a host of categories of businesses that must be accessible to people with disabilities if they are to integrate successfully into mainstream society. Resolutions have been reached with health care facilities, grocery stores, restaurants, senior centers, and others. For example, Safeway Stores, Inc. entered an agreement with the Department to modify security bollards or cart corrals used at the entrances to many of its stores nationwide so that customers who use wheelchairs can have greater access.
Making buildings correct from the start is much more cost efficient than is retrofitting existing facilities. To ensure that the future-built environment is accessible to people with disabilities, the ADA requires all new construction and alterations to meet specific architectural design standards. The Department has enforced these provisions with respect to all types of new construction and alterations through the investigation of individual complaints and through compliance reviews that enable the Department to review architectural plans to determine if new construction projects will comply with the ADA's standards.
Mediation is an informal process in which a neutral third party assists opposing parties to reach a voluntary, negotiated resolution of a dispute and, in this context, a charge of discrimination. Mediation gives the parties the opportunity to discuss the issues raised in a dispute, to clear up misunderstandings, to determine the underlying interests or concerns, to find areas of agreement, and, ultimately, to incorporate those areas of agreements into resolutions. The Department's ADA mediation program, which operates under a contract with the Key Bridge Foundation, receives title II and III complaints for mediation. Successful instances of mediation have resolved complaints that dentists and other health care providers failed to provide effective communication to patients who were deaf or hard of hearing; that town halls, grocery stores, pharmacies, and health care facilities were inaccessible to people who use wheelchairs; that places of public accommodation, such as retail stores, prohibited people from entering with their service animals; that child care centers excluded children with autism; and complaints alleging a wide variety of other issues and circumstances.
The mediation program currently receives referrals of complaints under titles II and III for mediation by professional mediators who have been trained in the legal requirements of the ADA. An increasing number of people with disabilities and disability rights organizations are specifically requesting the Department to refer their complaints to mediation. More than 450 professional mediators are available nationwide to mediate ADA cases. Over 80 percent of the cases in which mediation has been completed have been successfully resolved.
The Department also has a variety of ongoing technical assistance endeavors to explain the requirements of the ADA to the general population and to specific, targeted populations.
Chief among the ongoing ADA efforts is the toll-free ADA Information Line, which provides information to the public about the requirements of the ADA and distributes technical assistance publications. Automated service is available 24 hours a day, seven days a week. During regularly scheduled hours, disability rights specialists respond to questions and concerns from people with disabilities, State and local government officials, and the business and nonprofit communities. During the past year, the ADA Information Line responded to 110,000 callers. The Department also operates an ADA Information Line Fax Delivery Service that allows the public to select from among 32 different ADA technical assistance publications and receive the information directly on their fax machines or computer fax/modems. The Department's ADA Home Page provides information about ADA activities, and is now a nationally recognized source of information on the ADA. In the past year, the ADA Home Page (www.usdoj.gov/crt/ada/adahom1.htm) has received over 11 million visits -- making it one of the top web sites at the Department.
The second key component of the technical assistance effort is the extensive written and video materials that the Department has developed to explain rights and responsibilities under the ADA, including "Technical Assistance Manuals" for titles II and III, a series of "Question and Answer" booklets, and numerous other publications. All of the publications are available free of charge. The Department provides millions of pieces of information and publications annually to people with disabilities and covered entities.
In addition to these general pieces, the Department has developed technical assistance pieces that have specific relevance to access to community life. For example, the Department developed a variety of brochures, training guides, and roll-call videotapes to educate police and courts about how to ensure equitable treatment to people with a variety of disabilities. Through the ADA Technical Assistance Grant Program, the Department has worked with trade associations and others to develop ADA materials tailored to meet the needs of specific audiences, including hotels and motels, restaurants, grocery stores, small businesses, builders, mayors and town officials, law enforcement, people with disabilities, and others. The Department has also worked with State-based organizations to help State and local government officials and local business owners become aware of the ADA and the resources that are available to assist them in complying.
Despite nearly a decade of ADA enforcement, technical assistance, and considerable progress in advancing the rights of individuals with disabilities, barriers remain in many sectors of American society. The Department has identified a number of barriers to the community placement of individuals who are currently residing in institutions. These barriers are discussed below.
Many people are unnecessarily institutionalized because of a general lack of awareness and understanding of the requirements of Olmstead and the ADA. Individuals who reside in institutions are often unaware of their rights or how to pursue them. Under Olmstead, individuals with disabilities have the right to be given a choice as to whether they wish to be placed in community settings when such a placement is deemed appropriate by their treating professionals. In some cases, especially in nursing homes, the problem of individuals with disabilities not knowing their rights results from a failure to reach and educate the affected population. In other cases, educational materials or efforts that currently exist may be inadequate for individuals with certain kinds of disabilities, such as cognitive, learning, or developmental disabilities.
This lack of awareness also reaches professionals and others who work with individuals with disabilities. The Olmstead decision places a great deal of responsibility on treating professionals. Professionals working with the institutions may be unaware of the availability of viable alternatives within the community. Individuals with certain kinds of disabilities often have legal guardians who make decisions about their care. Guardians, in addition to the individuals with disabilities, need educational outreach regarding both the ADA and the availability of viable services within local communities. An intensive educational effort, including technical guidance to individuals, professionals, and the States, is necessary to ameliorate these problems.
The lack of accessible services or facilities is also responsible for the placement of qualified individuals with disabilities in institutional settings that are inappropriate for their needs. For example, a person who is deaf may have to find a nursing home far away from his family and friends because none of the nursing homes in his State provide qualified sign language interpreters or other appropriate auxiliary aids or services that are necessary for him to communicate effectively. As part of the public input required by the Executive Order, commenters speaking on behalf of an advocacy organization noted that there are still large numbers of persons who are deaf in institutions across the country, many of whom were misdiagnosed as having mental illness or mental retardation because of their inability to communicate effectively. See, e.g., teleconference testimony.2 They testified that such individuals have languished in institutions because of communication barriers that affect diagnosis, consent for treatment, and treatment, itself. Effective communication services must be provided within communities -- especially in health care services -- if individuals who are deaf are to receive meaningful access to community life.
| ... [Our State] institutionalizes many individuals simply because they face multiple disabilities or disabilities for which there are no community-based State programs. Our agency filed a Federal lawsuit nearly two years ago on behalf of a woman who is deaf and mentally ill. Her doctors felt she could live in the community, but the State delayed her discharge repeatedly because it had not arranged to accommodate her deafness. After two years of litigation, we expect that the [psychiatric facility] will discharge her in September and she will finally begin treatment, with accommodations, in an appropriate community-based program. -- E-mail testimony of Aug. 27, 2001. |
Children with disabilities may be improperly placed in institutions, rather than in foster care or remaining with their families, because of the lack of accessibility within the community. Some children may be placed in inappropriate institutions because of the lack of access to appropriate and accessible child care facilities. Such facilities may have architectural barriers to access by children who use wheelchairs. More often, the problem resides in discriminatory policies and practices of such facilities. One example from the Department's enforcement efforts, detailed above, is the case of a child with mental retardation whose child care center refused to keep him enrolled simply because he was unable to initiate his own activities. The child's presence in no way altered the basic services provided by the child care center; he was simply different and fell victim to discriminatory policies that resulted from ignorance or fear.
One of the requirements of the Executive Order is that Federal agencies come together to assess their policies and practices as well as the laws each agency enforces. In the public input solicited in execution of the Executive Order, the Department received general comments expressing the concern of fragmentation of Federal programs and Federal enforcement efforts. See, e.g., testimony given during the Aug. 15, 2001, teleconference.3
The Department has reviewed its internal practices to ascertain any limitations in the laws it enforces and the Department's means of enforcement. This review identified a potential gap in the Department's enforcement efforts. The issue arises when States contract with private institutions to perform services. Placing people in private facilities does not alter the State's obligation under the Olmstead decision. The placement may, however, affect the remedies available to an institutionalized person because the Civil Rights of Institutionalized Persons Act (CRIPA) does not reach these institutions. Much of the Department's litigation concerning institutions has relied upon CRIPA coverage and the section within the Civil Rights Division that enforces it. (See discussion of CRIPA, below).
To address these limitations, the Department needs to work closely with HHS, which receives all ADA-related health care complaints under title II and investigates such complaints to determine whether to refer them for litigation by the Department. HHS receives a significant number of complaints from individuals within institutions. Although HHS has worked successfully with States to resolve such cases and establish comprehensive plans for community placement, there may be individuals who remain unassisted. The Department and HHS should work together to devise a strategy within the dictates of each agency's jurisdiction.
As noted above, the barriers that keep individuals in institutional settings often reside in the community. The lack of accessible housing, accessible transportation, and access to health care services, especially psychiatric care, remain formidable problems.
The chief barrier identified in our solicitation of public input is the lack of physically accessible housing in communities; this includes both private and public, multi-family housing as well as accessible group homes or similar communal-living arrangements. Although the ADA covers zoning and permitting, processes that may impede housing opportunities for individuals with disabilities, the barrier of affordable, accessible housing is most appropriately addressed by the Department's enforcement of the Fair Housing Act. (See discussion under Fair Housing Act, below).
The most commonly used mode of transportation by individuals moving from institutions into the community is likely to be public transportation. Public transportation includes paratransit services and inner city buses, both of which may remain inaccessible in some communities. Public transportation may be inaccessible for a number of reasons, including the lack of accessibility of some public buses to individuals who use wheelchairs. Public transportation may also present problems to individuals who are blind, because routine "stops" may not be indicated audibly. The Department shares responsibility for enforcing the ADA with the Department of Transportation, which is chiefly responsible for investigation of public transportation barriers. Taxi services may also be used by the population of individuals moving from institutions into the community. As discussed above, the Department of Justice has worked to make taxi services accessible and, specifically, to prohibit discriminatory policies and practices that result when taxi drivers refuse to serve people who use wheelchairs or who have service animals. Despite these efforts, taxi services in some communities may remain inaccessible to individuals with disabilities. Other factors within a community -- such as a lack of curb cuts -- may present barriers to the free movement of individuals with disabilities, even if basic transportation services are accessible.
| I am totally blind and my biggest problem in functioning in society is transportation. I have adequate financial resources in my life right now but I still don't have my medical needs met because I can't get transportation to medical services. Even if education is available, how do I get there? I have intelligence and the ability to work; but, again how do I get there? -- E-mail testimony of Aug. 27, 2001. |
The third essential part of the successful implementation of Olmstead, and a primary barrier in many communities, is access to appropriate health care services. Health care services may include general medical care, or more specialized treatment of physical health problems. Most critical in meeting the needs of this population is access to psychiatric and psychological care and counseling, and other similar treatment options that serve individuals who have resided in institutions. Communication barriers, mentioned above, are one way in which such services are inaccessible to individuals with disabilities. Other barriers, both architectural and policy or practice-based, remain. One area of public comment addressed the need within the population of individuals implicated by Olmstead for access to dental services. See, e.g., e-mail testimony of Aug. 14, 2001.4 In some comments, the accessibility problem had less to do with architectural barriers, and more to do with a refusal by dentists to treat individuals with developmental or mental illnesses. Discriminatory practices and policies that arise from fear are an important barrier in health care services.
If an individual is to successfully adapt to community placement, a host of other entities and services that are covered by the ADA must be available, such as grocery stores and clothing stores.
Employment is another barrier that must be addressed. A lack of accessibility in educational or training and vocational services was a common subject of public comment. Full participation of individuals with disabilities in education programs is often a prerequisite for meaningful competitive employment. There is often a lack of employment opportunity for people moving from institutions to community settings, especially for individuals with little or no work history. Many people with disabilities are underemployed, earning comparatively lower salaries than their nondisabled counterparts.
Other services within the community may impose barriers to successful community placement and retention of people with disabilities. Police officers may react inappropriately when observing people with disabilities. Sometimes the responses of such officers exacerbate a delicate situation. Police may also treat deviant but non-threatening behaviors as criminal.
In short, a variety of barriers to the community placement of individuals with disabilities remain. Many such barriers are covered by the ADA and other Federal laws. After almost ten years of ADA enforcement, pockets of the economic sector are accessible; other pockets remain inaccessible. Time and coordinated education and enforcement should assist in addressing these barriers. The Department's specific ideas for how to begin to address the barriers identified by this review and to implement Olmstead are provided below.
To address the barriers identified in this report, the Department recommends the following specific and narrowly-tailored approaches to meet the essential needs of individuals who are moving from institutions into the community.
Executive Order 13217 specifically requires the provision of technical guidance by Federal agencies. To address the lack of awareness regarding the requirements of the ADA and, specifically, of the Olmstead decision, the Department will develop and issue 3 technical assistance pieces. The first piece will be designed to reach individuals with disabilities who are currently living within institutions and will inform such individuals of their rights under the ADA and Olmstead. The second document will be designed for people who are on the verge of institutionalization, such as the elderly. The third piece will assist States in their responsibilities for the implementation of Olmstead, building upon the work HHS and other agencies have done with the States in developing comprehensive plans for the community placement of individuals with disabilities. For example, the Department of Education (ED) is also working with HHS and the Department of Labor (DOL) to train a core group of cross-disability leaders to work with States to develop their five-year plans. These disability advocates are helping States to plan, implement, and evaluate their community-based services for persons with disabilities. Therefore, the Department will work cooperatively with HHS, ED, and DOL in developing a technical guidance piece for the States. The technical assistance piece for the States may be issued either by the Department, or by HHS, ED, DOL, and the Department, jointly. This intensive educational effort should assist in improving the understanding of all parties necessary to the community-placement initiative.
As required by the Executive Order, the Department will continue to work closely with the HHS Office for Civil Rights to ensure a coordinated Olmstead-enforcement approach. To address the problem of States contracting with private institutions, the Department will work with HHS to ensure that private institutions that are acting on behalf of the States are providing services in a manner consistent with States' obligations under Olmstead. Additionally, the Department will work to ensure that private institutions do not themselves discriminate on the basis of disability by, for instance, ensuring that such institutions provide effective communication to people with communication-related disabilities and make reasonable modifications to policies, practices, and procedures when needed to fully integrate people with disabilities into their programs. The Department will also confer with ED staff to identify ways to reduce barriers in educational opportunities for individuals with disabilities to improve access to meaningful competitive employment. The Department will collaborate with ED to realize this important objective.
The Department will also intensify efforts to implement Olmstead in court -- as a plaintiff, intervenor, or amicus curiae -- in situations where entities refuse to comply voluntarily with the Olmstead decision. In addition to vigorous enforcement of the ADA to promote greater overall accessibility within communities nationwide, the Department will investigate ways to ensure that essential services covered by the ADA, such as transportation and health care services, are made accessible to individuals with disabilities who are moving from institutions into communities.
The Department will work with the Department of Transportation toward ensuring the accessibility of inner-city buses and paratransit services. Working collaboratively with DOT, the Department will develop a list of criteria to guide DOT to refer appropriate paratransit complaints to the Department for enforcement purposes. The Department will look for opportunities to participate in private lawsuits as amicus curiae on issues involving paratransit services and accessible public transportation and will continue its efforts to expand the available modes of accessible transportation nationwide. In conjunction with the DOT, the Department will also reach out to public transit organizations to encourage voluntary compliance with the ADA.
In response to the public input the Department received regarding communication barriers, the Department will investigate ways of expanding its nationwide campaign to improve communications access for people who are deaf or hard of hearing, or who have speech disabilities, by targeting, in particular, mental health services within the community.
The Department also will look for ways to address the problem of dental services being inaccessible to individuals moving from institutions into community settings. The Department will work to combat discriminatory policies and practices in which dental services are not provided to individuals with certain types of disabilities, such as developmental disabilities and mental illnesses.
In furtherance of the goals of Executive Order 13217, the Department will also work with HHS in determining whether it would be possible to refer unresolved individual complaints dealing with Olmstead from HHS to the Department's ADA Mediation Program. HHS currently has over 200 open Olmstead-related complaints. Such an initiative will require the two agencies to develop a process through which HHS may refer complaints to the Department's mediation program. One way to formalize such an initiative would be for HHS and the Department to commit to a Memorandum of Understanding regarding the mediation of Olmstead-related complaints.
Pursuant to the Olmstead initiative, the Department will offer training with regard to the Olmstead decision and related issues to the mediators. In addition, the Department will also identify advocacy groups who can train lay advocates to assist individuals in the mediation process who, because of disabilities ranging from mental retardation to cognitive and learning disabilities, might desire or require additional assistance and advocacy on their behalf.
The public input the Department received concerning the execution of Executive Order 13217 has been helpful to the Department in determining how best to implement Olmstead. The National Listening Session and other efforts undertaken by HHS identified barriers to community placement generally within the Federal system. The Department would like to solicit input regarding the issues affecting the Department's enforcement and technical assistance responsibilities. To that end, the Department will initiate a more targeted, and smaller-scale meeting with leaders and advocacy groups that deal with Department-specific issues. The Assistant Attorney General for the Civil Rights Division will chair this meeting with advocacy groups. This meeting will review issues pertaining not only to the ADA, but also to enforcement of the Fair Housing Act, and the Civil Rights of Institutionalized Persons Act, both of which are discussed below.
In addition, the Department will consider outreach targeted at determining what specific barriers keep children in institutions, and away from family settings. The Department is especially interested in keeping children with families and families together within communities and sees Olmstead implementation as a first step in that process. Specifically, the Department would like to meet with advocacy groups to assess whether the problem of children residing within institutions lies chiefly in a lack of accessibility in child care settings or other similar barriers that are covered by the ADA. The Department also will work with child care organizations and educators to promote the delivery of services to people with disabilities. The Department also will collaborate with the Department of Education (ED) in undertaking this effort since ED is responsible for administering the statutes applicable to educational services for children with disabilities.
The Department will use the considerable network of advocacy groups and organizations representing States that it has developed pursuant to its ADA and other enforcement activity to distribute its Olmstead technical assistance pieces, and the Department will coordinate with HHS and its component, CMS, to reach individuals in nursing homes and other institutions. The Department will continue its ongoing outreach efforts and send Department members to upcoming conventions and other speaking opportunities dealing with Olmstead and the community placement of individuals with disabilities.
The right at issue in Olmstead is the right for an institutionalized person to be served in the most integrated setting appropriate to the individual's needs. This right is found in the regulations issued by the Attorney General to comply with Congress's mandate in title II of the ADA that no individual with a disability should be subjected to discrimination by any State or governmental agency. 42 U.S.C. § 12134. Following Congress's explicit directions, the title II provision relevant here, known as the "integration regulation," requires States to "administer services, programs, and activities in the most integrated setting appropriate to the needs of qualified individuals with disabilities." 28 C.F.R. § 35.130(d) (ADA title II integration provision).
As part of its CRIPA enforcement efforts, the Department conducts investigations of conditions of confinement in nursing homes, psychiatric hospitals, facilities for persons with developmental disabilities, and other health care facilities and, pursuant to the ADA, reviews the appropriateness of placement of individuals in these institutions. The Department also reviews discharging procedures by professionals at facilities and ensures that the care and treatment of individuals discharged to the community is safe and appropriate to meet the individuals' needs. As part of its CRIPA investigations of health care institutions, the Department collects evidence to determine whether there are violations of title II of the ADA, particularly the ADA integration regulation. The Department also enforces other Federal statutes and regulations, such as Section 504 of the Rehabilitation Act, title XIX of the Social Security Act, and various Medicaid programs.
Under CRIPA, the Department may initiate a civil action where there is reasonable cause to believe that a State or political subdivision of a State is engaged in a pattern or practice of subjecting institutionalized individuals to conditions that deprive them of the rights secured by the United States Constitution or Federal laws.
Over the years, the Department has investigated ADA integration regulation violations at 31 institutions for people with developmental disabilities, 11 psychiatric hospitals, 6 nursing homes, and 1 residential school for students with visual disabilities. The Department continues to pursue and has completed cases and investigations in 17 States, the District of Columbia, and the Commonwealth of Puerto Rico. The Department has also filed briefs as amicus curiae in 4 cases addressing the meaning of the ADA's integration regulation in cases involving the unnecessary segregation of people in institutions. See Appendix A for a list of Olmstead work under CRIPA.
Hundreds of individuals who were being unnecessarily institutionalized are now living safely in the community with adequate supports and services, as a result of the Department's enforcement of CRIPA and the ADA's integration regulation. For example, in United States v. Tennessee, CA 00-6120, 00-6265, 00-6476 (W.D. Tenn. 1992), the United States alleged that Tennessee maintained unconstitutional conditions of confinement at Arlington Developmental Center (ADC). Following a lengthy trial, the district court ordered the State to develop a comprehensive plan for placing ADC residents into appropriate, quality community placements. Since the time a plan was developed and approved, 63 ADC residents have been placed in the community. Based upon the Department's ongoing monitoring efforts in this case, the majority of the remaining ADC residents will be discharged into the community in the next two years. In another case, two Louisiana facilities for persons with developmental disabilities housed over 1,700 people when the Department began its investigation. The Department worked with the State to transition inappropriately confined people into the community. Today, more than 700 formerly institutionalized persons now live in the community. In Wisconsin, since the Department began its investigation of two facilities for persons with developmental disabilities, more than 650 persons have moved into the community. Similar cases in other States have resulted in the community placement of countless individuals.
The Department has also successfully argued as amicus curiae that Olmstead and the ADA integration regulation require jurisdictions to serve unnecessarily institutionalized people in the community and that jurisdictions may be required to expand, modify, and revise existing services to do so. See, e.g., Davis v. California Health and Human Services (N.D. Cal. 2000) (residents of a large nursing home must be served in the community where appropriate).
The Department conducts regular investigations of health care facilities and reviews the appropriateness of placement of individuals in institutions. It has worked successfully with a number of institutions to identify individuals who would be more appropriately served in the community. The Department then works with jurisdictions to identify required residences, day programs, vocational opportunities, specialized services, medical care, and related services and other supports needed to serve individuals in the community. For example, in United States v. Puerto Rico, Civ. No. 99-1435 (D.P.R.), in late September 2001, the Department will submit a plan to the Federal district court, seeking approval for a person-centered community services plan that creates from scratch a comprehensive community services system for persons with developmental disabilities who currently live in segregated institutions. The Commonwealth has committed to provide individualized assessments for all of the over 200 institutionalized persons and place in the community those who are determined to require placement in a more integrated setting. The plan will provide for assessments, appropriate transition planning and implementation, and creation of the infrastructure of supports and services for that community system that will include housing, transportation, supported employment and/or integrated training opportunities, recreation, case management services, and respite care funds and supports for families who choose to care for such persons at home. As in Puerto Rico, the Department has worked with institutions all over the country to help those facilities identify persons who should be moved to homes in the community.
The Department regularly evaluates the discharge-planning processes and policies of the institutions it investigates and ensures that the process of transition from an institution to the community is safe and adequate. In many cases, the Department has found that inadequate discharge planning and transitional services have resulted in placements in inappropriate settings and high rates of readmission to institutions, in violation of Olmstead. For instance, in a case involving a psychiatric hospital in Virginia, the Department ensured that discharge planning began when a person was admitted to the hospital. The hospital strengthened its treatment services to ensure integration of discharge planning into the patient's care plan. Representatives of local community providers participated in patients' treatment in the hospital to ensure smooth transition to a community setting upon discharge. As a result of the Department's work, the facility improved coordination between the hospital and community providers and decreased patient placements to homeless shelters. In a case involving a nursing home in Philadelphia, as a result of the Department's work, the facility now prepares discharge plans upon admission to the nursing home. The plans specify the individualized needs of the residents and how those needs will be met in the community setting. Where appropriate, residents are now transferred to much less restrictive settings such as independent apartments, the homes of family or friends, or other community-based homes. In a case involving D.C. Village, a nursing home in the District of Columbia, when the District of Columbia decided to close the nursing home following litigation with the Department, the Department secured court orders to ensure that transitions to the community would occur safely for residents. Similar cases in many States have resulted in the improvement in the discharge-planning processes in scores of nursing homes, psychiatric hospitals, and facilities for persons with developmental disabilities.
The Department also tours the homes of people who are moved from institutions into the community to ensure that placements are safe and appropriate to meet individual needs. For instance, in United States v. Williams, Civ. No. 76-293 (D.D.C.), the Department visits the homes of former residents of Forest Haven, the District of Columbia's now-closed institution for persons with developmental disabilities, to ensure the adequacy of the services being provided. The Department has directed its energies to ensuring that individuals receive adequate protections, services, and supports in the community. Earlier this year, the Department negotiated and filed an extensive and comprehensive remedial plan to help redress deficient conditions and practices within the District's community-based system. An independent court monitor oversees the defendants' compliance. Moreover, the District of Columbia created an independent, nonprofit organization to provide independent monitoring, lay advocacy, and legal representation to all persons with developmental disabilities served in the District's system. The District of Columbia is funding this independent organization with over $31 million over the course of the next 11 years. In similar cases throughout the country, the Department ensures that people moved from institutions to community settings as a result of Olmstead are safe and provided with adequate, appropriate services.
The Department has also participated as amicus curiae in several cases involving the unnecessary segregation of people in institutions and the meaning of the ADA integration regulation, as described above.
Through the Department's CRIPA work, hundreds of individuals who were unnecessarily institutionalized are now living safely in the community with adequate supports and services. The Department's work under CRIPA, however, can be hampered in several important respects.
First, CRIPA only authorizes investigation of institutions where there are patterns or practices of violations of rights. Thus, the Department has no jurisdiction to investigate individual Olmstead complaints under CRIPA.
Second, the Department's ability to conduct CRIPA investigations is dependent on the cooperation of the jurisdiction being investigated. In the 20-year experience of enforcing CRIPA, the Department has successfully settled the vast majority of cases in which the jurisdiction has given it access to documents and the institution. In cases where access is denied, the Department may have no alternative but to initiate costly and time-consuming litigation.
Third, CRIPA authorizes the Department to investigate institutions that are operated by, or on behalf of, a governmental authority. Thus, the Department has no CRIPA jurisdiction to investigate purely privately-run facilities.
Fourth, some States and other political subdivisions of States have resisted the Department's efforts to investigate the services provided to individuals who are moved from an institution into the community. The public entities argue that the Department's ability to enforce CRIPA ends at the brick walls of the institution. Some States and political subdivisions of States in an effort to swiftly implement Olmstead or because of lack of adequate oversight, have placed individuals in the community without adequate supports. These individuals have been subjected to unnecessarily difficult conditions. In some cases, individuals are quickly re-institutionalized or incarcerated because the services appropriate to their needs have not been provided in the community. The Department must have the ability to ensure that the individuals who are moved from the institutions to the community as a result of its law enforcement efforts are safe and getting services appropriate to their needs.
Some parents and other family members resist the Department's efforts to enforce the integration regulation. They are afraid for the safety of their loved ones if their relatives are moved to the community. These fears are not unfounded, given that some States have not lived up to their responsibilities to inspect conditions of care in the community and the adequacy of services provided to individuals moved from institutions to the community.
| For the Home and Community-Based Program, the largest and most popular program providing [community] services, we must devise reasonable services to ensure that the States fulfill their oversight responsibilities.... Otherwise, we risk the possibility of serious health and safety problems in community-based programs. -- Testimony given during the Sept. 5, 2001, National Listening Session. |
Also, laws requiring quality of care oversight are geared towards institutions, not community-based settings. Although current statutes and regulations do require states to assure CMS that safeguards are in place to protect the health and welfare of home and community-based waiver enrollees, expectations about specific state responsibilities are unclear. For this reason, DOJ strongly endorses HHS' commitment to develop a multi-pronged strategy to address quality of care issues in home and community-based services. See Preliminary Report of Federal Agencies' Actions to Eliminate Barriers and Promote Community Integration.
As HHS recognizes in its Report, there are institutional biases in the Medicaid statute itself. For a discussion on this point, see Report of the Department of Health and Human Services on Community-Based Alternatives for Individuals with Disabilities. For example, the Medicaid statute does not provide for reimbursement of family members for in-home care of relatives with disabilities. Families without adequate resources to pay for supports may be faced with institutionalizing individuals who could otherwise be cared for in family homes. DOJ strongly endorses HHS' commitment to establish a Medicaid Community Services Reform Task Force to advise HHS on this and other issues.
| I am a young mother to a child with a disability.... I have been fighting almost non stop with social services in my area to get in home help with my daughter for going on seven months now. Samantha's seizures are sometimes so severe that she quits breathing. She requires about one-sixth the amount of sleep that a typical healthy child does at this age. I spend most of my days and nights so sleep deprived I'm not sure if I'm coming or going. There were two occasions that I passed out from exhaustion and awoke several hours later to a crying baby. That is when I started asking for help. I have yet to receive it. I am not asking for social services to supply someone, I am asking for the funds so I can hire someone who already knows my child's needs and quirks. -- E-mail testimony of Aug. 27, 2001. |
Another barrier to community integration is the shortage of direct care workers to provide services to individuals moved from institutions into the community. These shortages result from a host of complex social and economic factors, including the characteristics of the local job market, local wage rates, differing job requirements and working conditions in community versus institutional settings. Another factor, however, is that there are disparities in compensation between direct care workers in institutional settings versus those in community settings. DOJ strongly endorses HHS' commitment to undertake a national demonstration designed to address shortages of community service direct care workers. See Preliminary Report of Federal Agencies' Actions to Eliminate Barriers and Promote Community Integration.
| This morning, like every other morning, there were thousands of people with disabilities who woke up and wanted to get out of bed but couldn't because there was no one there to help them.... While many factors contribute to this, the main one is simple economics. Because, regardless of the State or region, most community-based service workers are expected to do their jobs at poverty level wages often without health coverage or other employee benefits or with little or no opportunity for career advancement. Not surprisingly, there's an ever increasing shortage of these workers.... This results in turn over rates of 100% among many provider agencies, increased incidences of abuse and neglect and countless instances when people are left, often in their own waste, because their attendants showed up late that day or not at all. The future of community-based services and the very lives of millions of people with significant disabilities, therefore, hinges on our ability to begin to remedy this national crisis immediately.... If we truly value people with disabilities being in the American community, we must value and compensate those who make it possible. -- Testimony given at the Sept. 5, 2001, National Listening Session. |
Olmstead places a lot of responsibility on treating professionals in institutions to assess whether an individual would be more appropriately served in the community. Oftentimes, professionals in institutions are not aware of alternatives available in the community and make recommendations accordingly. This presents a significant barrier for an individual who would like to move from the institution into the community.
A final barrier to fulfilling the goals of the President's Executive Order is that sometimes States or other jurisdictions are reluctant to discharge individuals who qualify for community placement under Olmstead into the community because, eventually, institutional populations will diminish and may result in the closure of the facility. In that case, staff at institutions lose their jobs.
To continue to break down the barriers to persons with disabilities living in institutions to move into the community, the Department is committed to enhancing its enforcement of CRIPA. The Department will continue to devote resources to investigations and litigation, where appropriate, with respect to institutions where individuals are unnecessarily institutionalized. The Department will continue to provide substantial technical assistance to jurisdictions about how to comply with Olmstead. The Department will also continue to participate as amicus curiae in impact institutional litigation where the ADA integration regulation is at issue. Additionally, the Department will take the following specific steps to enhance its ability to enforce Olmstead and help move people from institutions to community settings when appropriate.
The Department may consider additional mechanisms that would give it greater investigative abilities to address issues arising from community placements and to address allegations of discrimination in purely private institutions.
The Department will train its staff on the benefits of community placement over institutionalization.
Department staff will attend national conferences on topics relevant to serving people with disabilities in the most integrated settings appropriate to their needs and collect information on the speakers and attendees to solicit information on leaders in the field. In addition, staff will solicit input from advocacy groups in the field to gather suggested consultants' and experts' names and to alert the Department to private lawsuits where amicus curiae participation by the Department would assist the court in interpreting and applying the ADA integration regulation.
To overcome the resistence of some parents and other relatives to the community placements of their institutionalized loved ones, Department staff will increase its efforts to educate parents and other family members concerning the benefits of community placement over institutionalization in large, congregate settings. The Department also will increase efforts to educate individuals at risk of institutionalization on alternatives to placement in facilities. Field trips to successful community placements may help aid the educational process.
The Department will explore ways to increase training for treating professionals in institutions so that they understand the possibilities of treatment in the community and the alternatives available.
To address the shortage of direct-care staff available to work in community settings and States' resistence to shrinkage of institutions and the resulting loss of staff positions, the Department will explore ways to transition competent former institutional staff to work in community-placement settings.
To address the increasing numbers of persons with mental disabilities in the nation's jails and prisons, the Department will explore ways to increase the number of mental health courts across the country. Mental health courts would increase the diversion of persons with mental disabilities from correctional settings to appropriate treatment settings in the community.
| Five times as many people [with mental illness] are incarcerated than are in State mental health treatment facilities. -- Testimony given at the Sept. 5, 2001 National Listening Session. |
The Department of Justice is committed to working with HHS and HUD on the following issues:
The Department will explore increasing enforcement coordination among its various components. For instance, Department components can undertake joint investigations that focus on the fraud committed by an institution that accepts Federal money to care for an individual who is unnecessarily institutionalized. The Department's Civil Rights Division and two United States Attorneys Offices have successfully conducted two such joint investigations under CRIPA and Medicaid/Medicare Fraud statutes.
The Department will also explore enforcement coordination to ensure that States that provide services through contracts with private institutions continue to meet their obligations under Olmstead. At this time, CRIPA only gives the Department jurisdiction to enforce title II of the ADA, which covers institutions run by State and other governmental agencies. The Civil Rights Division will also ensure private institutions meet their obligations under title III of the ADA.
Enforcement of the Fair Housing Act's prohibitions against discrimination on the basis of disability in all types of housing transactions is a key component of ensuring that persons with disabilities are able to live in communities of their choice across the country. The Department shares authority for enforcing the FHA with the Department of Housing and Urban Development (HUD). HUD investigates, conciliates, and adjudicates administrative complaints alleging violations of the FHA. DOJ investigates and litigates claims involving a pattern or practice of discrimination in violation of the FHA in addition to filing enforcement actions arising from individual administrative complaints where HUD has found reasonable cause to believe the FHA has been violated and the complainant or respondent elects to have the matter resolved in Federal court. DOJ's enforcement of the FHA's protections for persons with disabilities has concentrated on two major areas. The first is ensuring that newly constructed multi-family housing is built in accordance with the FHA's accessibility and adaptability requirements so that it is accessible to or adaptable for use by persons with disabilities. The second is ensuring that zoning and other regulations concerning land-use are not employed to hinder the residential choices of individuals with disabilities by unnecessarily restricting communal or congregate-residential arrangements, such as group homes.
| The Olmstead case is not about plans, but about real choice, getting and staying out of nursing homes and other institutions. Focus on addressing the shortage of accessible, affordable integrative housing for folks coming out of nursing homes and other institutions and those at imminent risk of going in. -- Testimony given at the Sept. 5, 2001, National Listening Session. |
The Fair Housing Act defines discrimination in housing against persons with disabilities to include, among other things, a failure "to design and construct" certain new multi-family dwellings so they are accessible to or adaptable for use by persons with disabilities, and particularly individuals who use wheelchairs. The FHA's design and construction requirements apply to multi-family dwellings of four or more units built for first occupancy after March 13, 1991. All ground floor units in buildings without elevators and all units in elevator buildings must have the following features: an accessible entrance on an accessible route; accessible common and public use areas; doors sufficiently wide to accommodate wheelchairs; accessible routes into and through each dwelling; light switches, electrical outlets, and thermostats in accessible locations; reinforcements in bathroom walls to accommodate the installation of grab bars; and usable kitchens and bathrooms configured so that a person using a wheelchair can enter the space and access the appliances and fixtures within.
In addition, Section 504 of the Rehabilitation Act of 1973 requires, among other things, that recipients of Federal funds, e.g., public housing authorities, make at least 5% of their newly constructed or substantially rehabilitated housing accessible to persons with mobility disabilities, including persons who use wheelchairs, and at least 2% accessible to persons with hearing or vision disabilities.5
Without the availability of accessible, affordable housing, many persons with disabilities have no choice but to live in institutions, such as nursing homes or hospitals, rather than living in community settings. Thus, ensuring an adequate supply of both public and private housing that is accessible and affordable is a vital step toward meeting the goals of President Bush's Executive Order.
Since October 1, 1996, the Civil Rights Division has brought 38 lawsuits against developers, builders, owners, architects, and/or site engineers to enforce the FHA's design and construction requirements for new, multi-family housing. Most of the cases have been resolved by consent decrees providing a variety of types of relief, including: retrofitting to bring inaccessible features into compliance where feasible and, where it is not, alternatives that will provide for making other housing units accessible; training on accessibility requirements for those involved in the design and construction process; a mandate that all new housing projects comply with the accessibility requirements; monetary relief for those injured by the violations; and civil penalties to deter future violations of the FHA.
In a recent case, the United States sued a developer and an architect who failed to design and construct a large apartment complex in Greenville, North Carolina, in compliance with the accessible and adaptable-design requirements of the FHA. The violations included steps leading into the individual units, an insufficient number of curb cuts, doors too narrow to allow passage by persons using wheelchairs, bathroom walls without reinforcements to permit the installation of grab bars, and an inaccessible rental office. The lawsuit was resolved through a consent decree, which required the builder and developer to: (1) retrofit the common-use areas of the apartment complex; (2) ensure that at least one fully retrofitted one-bedroom unit and two-bedroom unit remain vacant and available at all times for viewing and rental by a prospective tenant who requests such a unit; (3) give notice to every prospective tenant of the availability of the fully accessible units; (4) pay aggrieved persons up to $5,000 each for any out-of-pocket costs incurred because of the accessibility violations; and (5) include enhanced accessibility features in a portion of the units in the next two multi-family projects that they construct. The architectural firm that designed the complex was required to: (1) pay a $5,000 civil penalty; (2) donate 100 hours of technical assistance to non-profit organizations that serve the housing needs of persons with disabilities in the Greenville community; and (3) contribute to any amount paid by the other defendants to compensate aggrieved persons.
In another recent case, the United States sued a developer and builder for failing to design and construct five condominium developments located in Las Vegas and Mesquite, Nevada to be accessible to persons with disabilities. Design and construction violations in the common areas of the condominium developments included steps in the pathways and leading into the individual units, pathways that were too steep for individuals using wheelchairs to negotiate, inadequate curb cuts, and inadequate accessible parking spaces. Design and construction violations in individual condominium units included doors that were too narrow to accommodate wheelchairs, bathrooms that were too small to be used by individuals who use wheelchairs, and thermostats and electrical outlets in inaccessible locations. Under the terms of the consent decree that resolved the case, the defendants will spend over $1 million to make interior and exterior modifications to bring the properties into compliance with FHA requirements and establish a fund that will be used to retrofit the units of those owners who have not yet come forward to request them and pay compensatory damages to those persons who were victims of the defendants' discriminatory actions. Under the consent decree, defendants must also certify to the Department that any future construction complies with the FHA.
The Department has also actively enforced the FHA's other nondiscrimination requirements relating to persons with disabilities, including requirements for reasonable accommodation to housing providers' rules, policies, practices, and services and reasonable physical modifications to housing. Since October 1, 1996, the Civil Rights Division has brought 25 cases to enforce the FHA's prohibitions against disability-based discrimination and its reasonable accommodation requirements. In a recent case, the United States filed a lawsuit alleging that a condominium development in New York discriminated against an owner and resident of a condominium in the complex who has multiple sclerosis and uses a wheelchair. The development required the resident to park her specially-equipped van several spaces away from her unit and directly next to a garbage dumpster, even though the parking spaces for the development were generally unassigned. As part of the consent decree resolving the litigation, the condominium development agreed to establish and clearly designate for the complainant's sole use a permanent parking space immediately adjacent to the walkway leading to her unit.
Congregate living arrangements or "group homes" are often the primary alternative to institutionalization for many individuals with disabilities. As part of our effort to reduce the barriers to persons with disabilities living in communities, the Department has had a long-standing commitment to vigorous enforcement of the FHA's prohibition against municipalities' and other local government entities' use of zoning or land-use decisions or policies to exclude or otherwise discriminate against persons with disabilities by denying permits or zoning approval to group homes for persons with disabilities.
The FHA makes it unlawful to (1) utilize land-use policies or actions that treat groups of persons with disabilities less favorably than groups of persons without disabilities, e.g., enacting an ordinance prohibiting housing for persons with disabilities generally or housing for persons with specific types of disabilities, such as group homes for persons with psychiatric disabilities, from locating in a particular area, while allowing other groups of unrelated individuals to live together in that area; (2) take action against or deny a permit for a home because of the disability of individuals who live or would live there, e.g., denying a building permit for a home because it was intended to provide housing for persons with mental retardation; or (3) refuse to make reasonable accommodations in land-use and zoning policies and procedures where such accommodations may be necessary to afford persons or groups of persons with disabilities an equal opportunity to use and enjoy housing, e.g., making an exception to an occupancy standard that allows only five unrelated persons to live in a home by allowing a group home for persons with disabilities to have eight unrelated persons living in a home.
| As a social service agency that provides residential programs, supportive housing and supportive services to single women who are homeless and formerly homeless, [we are] encouraged by the President's concern and commitment for people with disabilities. In FY=01, 84% of the women that [we] serve[ ] had a mental, physical or multiple disabilities. In its 15-year history, [we have] engaged in seven battles to site our residential programs and supportive housing developments in communities that presented resistance to the presence of women who are homeless and disabled. What [we] faced were the misperceptions that the women we serve are violent and would negatively impact those communities. -- E-mail testimony of Aug. 24, 2001. |
Since October 1, 1996, the Civil Rights Division has brought 10 cases to enforce the non-discrimination provisions regarding group homes for persons with disabilities. In a recent case, the United States brought suit against the City of Toledo, Ohio, alleging that the City discriminated against persons with disabilities in violation of the FHA by enacting an ordinance which sought to limit the number of group homes that could be located within a specified distance of each other. Under the settlement agreement that resolved the litigation, the City agreed to repeal the challenged ordinance and to revise its zoning regulations. In addition, the City agreed to pay $95,500 in damages and attorneys' fees to the private plaintiffs in companion lawsuits.
There has been a significant amount of litigation concerning the ability of local governmental units to exercise control over group living arrangements, particularly for persons with disabilities. To provide guidance on these issues, the Department and HUD have issued a Joint Statement on Group Homes, Local Land-use and the FHA. This statement is available at www.usdoj.gov/crt/housing/housing_special.htm.
Ensuring that affordable housing developments are accessible to persons with disabilities is an important goal of the Department's fair housing enforcement program. To that end, DOJ, HUD, and the Department of the Treasury have entered into a Memorandum of Understanding (MOU) in a cooperative effort to improve compliance with the FHA, including the prohibition against discrimination on the basis of disability, for all properties that receive relief from Federal income tax in the form of low income housing tax credits. See www.usdoj.gov/crt/housing/mou.htm.
As part of this MOU, HUD and DOJ have agreed to identify low-income housing tax credit properties for which there is: (1) a charge by the Secretary of HUD for a violation of the FHA; (2) a probable cause finding under a substantially equivalent fair housing State law or local ordinance by a substantially equivalent State or local agency; (3) a lawsuit under the FHA filed by DOJ; or (4) a settlement agreement or consent order entered into between HUD or DOJ and the owner of a low-income housing tax credit property. Under the procedures outlined in the MOU, once these properties are identified, the Internal Revenue Service (IRS) sends a notice to the property owners advising them that a finding of discrimination, including an adverse final decision by the Secretary of HUD, an adverse final decision by a substantially equivalent State or local fair housing agency, or an adverse judgment by a Federal court could result in the loss of low-income housing tax credits. For matters resolved through settlement agreements or consent decrees, the IRS similarly sends notice to property owners that a judgment enforcing the terms of a settlement agreement or consent decree could result in the loss of tax credits.
Under the MOU, HUD and DOJ also provide FHA training upon request to designated IRS personnel and participants in the low income housing tax credit program. The IRS, in turn, provides technical assistance and training upon request to HUD and DOJ personnel on general tax administration issues under the low-income housing tax credit program. HUD and DOJ are also making training available upon request to State housing finance agencies and other entities, e.g., developers, property management companies, and syndicators, on the accessibility requirements of the FHA and Section 504 of the Rehabilitation Act.
Housing opportunities for persons with disabilities were enhanced in 1988 when the FHA was amended to prohibit discrimination on the basis of disability in the sale and rental of housing and to require the design and construction of certain new multi-family housing to be accessible to or adaptable for use by persons with disabilities. However, despite the progress that has been made in recent years, there remains a huge unmet need for affordable housing that is accessible to persons with disabilities in communities across the country.
The reasons for the lack of affordable, accessible housing are varied. First, there is widespread non-compliance with the FHA's new construction requirements for multi-family housing by both private and public providers. Much of this noncompliance may result from the lack of knowledge about the requirements on the part of builders, architects, and engineers. Because the design curricula at universities and technical schools do not usually include courses on accessible design, many professionals who design multi-family and public housing are often unfamiliar with the accessibility requirements of the FHA and Section 504 of the Rehabilitation Act. Moreover, State and local building codes typically do not incorporate Federal accessibility requirements relating to housing; therefore, State and local officials who review architectural plans and completed facilities for compliance with local building, fire, and life-safety codes typically do not review such plans or facilities for compliance with Federal accessibility requirements.
The systematic failure to build new housing in compliance with Federal accessibility requirements means that much of the work of ensuring access to housing for persons with disabilities is done in the context of modifications or retrofits to existing housing. While the incorporation of accessible or adaptable features in housing involves little, if any, cost at the design or the construction stage, retrofitting to bring non-compliant, multi-family housing and public housing into compliance with the FHA and Section 504 can be expensive and difficult. Also, many housing providers do not understand the FHA's prohibitions against discrimination on the basis of disability. These prohibitions include the obligation to provide reasonable accommodations for persons with disabilities or to allow such persons to make reasonable structural modifications to dwellings to improve accessibility. Thus, despite Federal mandates, units often remain inaccessible to persons with disabilities.
Even newly constructed, multi-family housing that complies with FHA requirements is often not fully accessible to all persons with mobility disabilities because the FHA requires only a modest level of accessibility or adaptability for persons who use wheelchairs. Also, the FHA only requires accessibility features in newly constructed, multi-family housing with four or more units; therefore, most single-family housing developments built today do not provide any options for accessible single-family homes.
The concern about the lack of accessible housing is not limited to the private housing market. Many public housing authorities are not in compliance with the nondiscrimination requirements of the FHA and Section 504 of the Rehabilitation Act regarding access to public and/or Section 8 housing for persons with disabilities. Thus, many low-income persons with disabilities are denied an equal opportunity to live in public and/or Section 8 housing across the country.
In communities where accessible housing does exist, some housing providers still have policies that exclude or place discriminatory conditions of residence on persons with disabilities, such as assisted-living facilities with policies barring residents from using scooters or electric wheelchairs or retirement communities that deny residence to persons with certain types of visible disabilities, e.g., persons