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Committee Recommendations

October 29-30, 2009

CFSAC voted upon and agreed for the following recommendations to be forwarded to the Assistant Secretary for Health and the Secretary:

The specific recommendations articulated by the Committee are:

  1. Establish Regional Centers funded by DHHS for clinical care, research, and education on CFS.  (Resubmitted from May 2009)

  2. AHRQ is expected to complete a review of CFS for the NIH State of the Knowledge Workshop.  After this process, we recommend that the findings be communicated immediately to key medical education, accreditation, licensing, specialty, and certification boards and organizations. In addition, we recommend a Surgeon General’s letter be disseminated to inform clinicians and other health professionals throughout the US and its territories on the impact of CFS on the health of US adults and children.

  3. Establish progressive leadership at the CDC that can achieve efficient, meaningful progress in CFS research, clinical care, and education.  (Resubmitted from May 2009)

  4. Multiple case definitions currently are used for CFS. The CFSAC rejects the empirical case definition and the terminology of “chronic un-wellness”, both of which are endorsed by the CDC, and recommends that DHHS recognize a need for and commit to support a national effort to arrive at a consensus definition of CFS that is accurate, standardized, and reflective of the true disease.

  5. Provide adequate funding to CDC to effectively carry out a detailed 5-year plan. This should include, but not be limited to, immediate progress in these priority areas (Resubmitted from May 2009 with minor modification to [a]):

    1. Identification of biomarkers, with increasing efforts in viral etiology of CFS:

    2. Creation of updated guidelines for adult and pediatric CFS management in full partnership with organizations representing CFS scientific and clinical expertise;

    3. Provision of updated web-based guidelines for CFS management given our current state of knowledge and expert opinion, again in full partnership with organizations representing CFS clinical and scientific expertise; and

    4. Provision of comprehensive information about CFS in partnership with CFS experts to the scientific community, medical and mental health providers, educational institutions and the public for both adult and pediatric CFS through DHHS resources.