Chronic Fatigue Syndrome Advisory Committee (CFSAC) Public Comments
October 3-4, 2012
Hubert Humphrey Building
200 Independence Avenue, S.W.
Room 800
Washington, D.C. 20201
Presentations
Wednesday, October 3, 2012
- Biomarkers for ME/CFS: Connecting the Dots and A Look into the Future - Jordan Dimitrakoff, M.D., Ph.D. (PDF - 2.5 MB)
- Biomarkers - An Overview and Future Look - Mary Ann Fletcher, Nancy Grace Klimas, Gordon Broderick (PDF – 1.3 MB)
- Research Update: Myalagic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), National Institutes of Health - Susan E. Maier, Ph.D. (PDF – 1.7 MB)
- FDA & Drug Regulation: Considering Chronic Fatigue Syndrome & Myalgic Encephalomyelitis - RADM Sandra L. Kweder, M.D. (PDF - 1.5 MB)
Thursday, October 4, 2012
- CDC Report for CFSAC – Ermias Belay, M.D. (PDF – 381 KB)
- Social Security Administration - Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: How SSA Adjudicates a Disability Determination - Arthur R. Spencer (PDF – 336 KB)
ME/CFS Organizations – Panel Discussion
- Wisconsin ME/CFS (PDF – 438 KB)
- CFS Solutions – West Michigan (PDF – 794 KB)
- Massachusetts CFIDSMEFM – Alan Gurwitt, M.D. (PDF – 239 KB)
- IACFSME, New Initiatives – Fred Friedberg, Ph.D. (PDF – 632 KB)
Public Testimony
(In alphabetical order)
Wednesday, October 3, 2012 (Morning Session)
- Chapo-Kroger, Lori (PDF - 53 KB)
- Dickey, Robert (PDF - 21 KB)
- Fero, Pat (PDF - 20 KB)
- Grobstein, Joan (PDF - 36 KB)
- Hillenbrand, Bernard (PDF – 17 KB)
- Jackson, Suzan (PDF – 20 KB)
- Lopez-Majano, Alexander (PDF – 41 KB)
- Lopez-Majano, Matthew (PDF – 41 KB)
- Schweitzer, Mary (PDF – 173 KB)
- Squires, Amy (PDF – 41 KB)
- Spinhirne, Jerrold ( 32 KB)
- Underhill, Rosemary (PDF – 35 KB)
Wednesday, October 3, 2012 (Afternoon Session)
- Bokelman, Andrew (PDF – 17 KB)
- Landson, Joseph (PDF – 36 KB)
- Lopez-Majano, Denise (PDF – 56 KB)
- McLaughlin, Jill (PDF – 120 KB)
- Miller, Courtney (PDF - 103 KB)
- Newton, Faith (PDF – 56 KB)
- Pearson, Donna (PDF – 26 KB)
- Spotila, Jennifer (PDF – 26 KB)
Thursday, October 4, 2012
- Chu, Lily (PDF – 36 KB)
- Dimmock, Mary (PDF – 42 KB)
- Lazell-Fairman, Matthew (PDF – 32 KB)
- Lopez-Majano, Jadwiga (PDF – 37 KB)
- Miller, Robert (PDF – 107 KB)
- Moore, Billie (PDF – 44 KB)
- Nicholson, Matina (PDF – 131 KB)
- Von Salis, Charlotte (PDF – 59 KB)
- Wiley, Janelle (PDF 34 – KB)
Written Testimony
- Anonymous 1 (PDF – 25 KB)
- Anonymous 2 (PDF – 70 KB)
- Anonymous 3 (PDF – 13 KB)
- Burmeister, Jeannette (PDF – 45 KB)
- Ferguson, Beverly (PDF – 16 KB)
- McNamara, Mary (PDF – 22 KB)
- Schmidt, Christie (PDF – 22 KB)