U.S. Department of Health and Human Services CHRONIC FATIGUE SYNDROME ADVISORY COMMITTEE Meeting Wednesday, May 27, 2009 9:00 a.m. to 5:00 p.m. Thursday, May 28, 2009 9:00 a.m. to 4:00 p.m. Room 800, Hubert H. Humphrey Building 200 Independence Avenue, S.W. Washington, D.C. 20201 |
Agenda |
Wednesday, May 27, 2009 |
9:00 a.m. | Call to Order Opening Remarks Roll Call, Housekeeping | Dr. James Oleske Chair, CFSAC Dr. Wanda Jones Designated Federal Official |
9:15 a.m. | Agency Updates: HRSA, SSA, NIH, FDA | Ex Officio Representatives |
10:00 a.m. | CDC Update - Research Program Strategic Plan
- Public Meeting
- Next Steps
| Dr. Mike Miller Ex-Officio |
12:00 p.m. | Public Comment | Public |
1:00 p.m. | Subcommittee Lunch | Subcommittee Members |
2:30 p.m. | Subcommittee Reports - Quality of Life
- Education
- Research
Committee Discussion | Committee Members |
4:00 p.m. | Public Comment | Public |
5:00 p.m. | Adjourn | |
Thursday, May 28, 2009 |
9:00 a.m. | Call to Order
Housekeeping
| Dr. James Oleske Chair, CFSAC Dr. Wanda Jones Designated Federal Official |
9:15 a.m. | Presentation: Pediatric CFS Case Definition | Leonard Jason, PhD |
9:45 a.m. | Presentations: Experiences of Families, Children and Youth with CFS - Family Perspective
- Youth Living with CFS
- Parent Perspective
| Lauren Allen and Mrs. Allen DVD (introduced by Dr. Bateman)
Ms. Rita Driscoll
|
11:15 a.m. | Roundtable Presentation/Discussion: - CFS and FII/MBP
- Office of Child Abuse and Neglect (HHS)
- Department of Education Office for Civil Rights
Discussion | Dr. David Bell Catherine Nolan Shelley Jackson
Committee Members |
1:00 p.m. | Subcommittee Lunch | Committee Members |
2:00 p.m. | Public Comment | Public |
2:30 p.m. | Discussion and Development of Recommendations | Committee Members |
4:00 p.m. | Adjourn | |