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CFSAC Agenda - May 27-28, 2009

U.S. Department of Health and Human Services
CHRONIC FATIGUE SYNDROME ADVISORY COMMITTEE

Meeting
Wednesday, May 27, 2009
9:00 a.m. to 5:00 p.m.

Thursday, May 28, 2009
9:00 a.m. to 4:00 p.m.

Room 800, Hubert H. Humphrey Building
200 Independence Avenue, S.W.
Washington, D.C. 20201

 

Agenda

Wednesday, May 27, 2009

9:00 a.m.

Call to Order
Opening Remarks

Roll Call, Housekeeping

Dr. James Oleske
Chair, CFSAC

Dr. Wanda Jones
Designated Federal Official

9:15 a.m.

Agency Updates: HRSA, SSA, NIH, FDA

Ex Officio Representatives

10:00 a.m.

CDC Update

  • Research Program Strategic Plan
  • Public Meeting
  • Next Steps

Dr. Mike Miller
Ex-Officio

12:00 p.m.

Public Comment

Public

1:00 p.m.

Subcommittee Lunch

Subcommittee Members

2:30 p.m.

Subcommittee Reports

  1. Quality of Life
  2. Education
  3. Research
Committee Discussion

Committee Members

4:00 p.m.

Public Comment

Public

5:00 p.m.

Adjourn

 

Thursday, May 28, 2009

9:00 a.m.

Call to Order

Housekeeping

Dr. James Oleske
Chair, CFSAC

Dr. Wanda Jones
Designated Federal Official

9:15 a.m.

Presentation: Pediatric CFS Case Definition

Leonard Jason, PhD

9:45 a.m.

Presentations: Experiences of Families, Children and Youth with CFS

  1. Family Perspective
  2. Youth Living with CFS
  3. Parent Perspective


Lauren Allen and Mrs. Allen DVD (introduced by Dr. Bateman)

Ms. Rita Driscoll

11:15 a.m.

Roundtable Presentation/Discussion:

  1. CFS and FII/MBP
  2. Office of Child Abuse and Neglect (HHS)
  3. Department of Education Office for Civil Rights

Discussion


Dr. David Bell
Catherine Nolan
Shelley Jackson

 

Committee Members

1:00 p.m.

Subcommittee Lunch

Committee Members

2:00 p.m.

Public Comment

Public

2:30 p.m.

Discussion and Development of Recommendations

Committee Members

4:00 p.m.

Adjourn